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Hi there ,
After two thyroid operations in May and September due to thyroid cancer, I am now coming up to the last bit ( I hope) of radioactive iodine at The Royal Marsden in Sutton. I have been on a low iodine diet for two weeks now and have sorted what I need to take in, but no one has told me what to wear. As I shall be in isolation for four days plus, I am wondering if I should take in loose trousers and t shirts for day and PJs for night. Really don't fancy being in those hospital gowns all the time. Now feeling very nervous at the thought of being shut away and a general sense of not knowing what is to happen. I have seen the pill I will have to swallow and nearly had a fit as it looked so big, but the physicist pointed out that it was magnified by the glass container it was in!
For those feeling nervous about the hemi or whole thyroidectomy, don't be worried aas it is not at all painful afterwards, just a bit tight round the scar.
I didn't have a choice because my cancer was found by chance during an ultrasound following a stroke in December. From then on the procedure took off at lightning speed.I had to go along with it.
I have opted out of the clinical trial at The R.M because I am the sole carer for my 95 year old husband, who has Alzheimer's and is confused enough already as to why I keep leaving him for hospital stays and appointments.
Luckily we have four marvellous children, who bend over backwards to help me out when I have to travel long distances. Incidentally the trains are on strike this week and I have to go to the hospital on Wednesday and Thursday mornings for thyrogen injections before the RAI on Friday. I am growing greyer by the minute!
If I can help anyone please ask. I am finding this forum very helpful and it is good to know others are going through the same. So far I haven't met any other thyroid papilloma sufferers.
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