Radioactive Iodine treatment..now it seems I'm going Hypo 😢
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Hi I'm new here. In Nov 14 I had radioactive iodine treatment. My last blood tests were completed in January. They were supposed to be repeated last week but the nurse was off sick now it's the 25.3.15. I have started to feel unwell. Spacey..achey..nails are splitting ...sooooooooo exhausted and my eyes are very sore. I emailed the lovely endocrinologist I was under and he is arranging for me to have my bloods done this week at the hospital. I guess I've joined the forum for support and to tap into knowledge. My last bloods were TSH -1..its been like that since I was hyper due to a toxic nodule..T4 10 can't remember free T3 but it was normal. Is it possible to feel so ill so fast?
I have to go to work and I am concerned about how I will manage. I was initially told I was unlikely to go Hypo after radioactive treatment.
Do all my symptoms sound like Hypothyroidism to those of you that are in the know??
Thanks in advance if you read this post.
Taz. Feeling nothing less than dreadful.
😢😥😬
I
1 like, 12 replies
gill43753 Taz_Tigs
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Taz_Tigs gill43753
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Sdob46 Taz_Tigs
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Taz_Tigs Sdob46
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Sdob46 Taz_Tigs
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Taz_Tigs Sdob46
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Taz
zoe110 Taz_Tigs
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I had radioiodine April 2014 for overactive thyroid due to Grave's disease ... I had a dreadful week in May and ended up in A & E with uncontrollable vomiting ... Drs could find nothing but my immune sytem showing I was fighting something... things then really improved and I felt really well, like I had in my 20s, now 48. I was so delighted and had a glorious summer. By Autumn the endocrinologist said I needed replacement thyroxine (Levothyroxine) Ive been on it, increasing the dose from 25mg up to 150mg daily and I feel dreadful. Today has been especially bad: no energy, stiff movements, giddy, heavy head, hey-fever-like nose/face. Weary. Only pleased I didn't have to work today but am working tomorrow so apprehensive about that ... From what you say you do sound hypothyroid and if your endocrinologist is good, try and get an appointment ASAP. I am struggling however as I think the replacement thyroxine may be part of the problem too. If your specialist is prepared to discuss treatment options, see what they are and set-up a plan of action. I keep being told 'it takes time for you to settle' but things seem to have been getting increasingly worse. I haven't yet joined the FB group but plan to. I am sorry you are feeling so awful and wish you luck in getting the Drs to listen and take on board your symptoms. Zoe Â
gill43753 zoe110
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Taz_Tigs zoe110
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Cheers Taz
zoe110 Taz_Tigs
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It really is great to hear others' experiences, both the positive and the negative. It seems there needs to be greater information given to people before they agree to have radioiodine - i was given no information about becoming hypothyroid, although warned it could occur. I think the thing I'm really strugging with is not being able to determine whether the symptoms stem from the replacement thyroxine or are being caused by my not having enough thyroxine? I have a friend who has had hypothyroidism since her 20s and she doesn't seem to have any of the problems I've been having - tiredness yes but not flu-like, hey fever-like, giddy/dizzy head fog which some days means I just about manage to get dressed and empty the dish washer   .... It really doesn't seem right. I am going to join the FB thyroid problems UK group as Gill and others have suggested and try to muster my energies towards campaigning. I think we need to find a public figure with these problems to help our cause.
Taz Tigs I hope things do settle down for you as others have found. It does take time and I know I'm not such a patient person when it comes to myself. Let us know how your blood tests go. I've booked to see my GP next week to request more tests and try and talk options. Â Â Best of luck Zoe
Taz_Tigs zoe110
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I'll update as soon as results are back.
Taz
Taz_Tigs zoe110
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