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Hi, I have been poorly for a number of years (seems like forever!!), symptoms such as fatigue, aching all over, pins and needles/numbness in various locations, night and day sweats, and more recently shortness of breath. Had numerous tests done and most come back normal or a bit off (e.g. raised ESR/CRP but they put this down to my Inflammatory Bowel Disease). A year or so ago I was seeing a rheumatologist and he ran some more tests and my ACE level came back as raised. He said the only thing that really causes that is Sarcoidosis, but sent me for a chest X-ray and it was clear. I was looking back over some results yesterday and as far back as 2009 I had a raised IgG level, again researching this Sarcoidosis can be a cause.
I know there is no definitive blood test for sarcoidosis but no one has given me asnwers as to why these levels are raised in me?
Wondering how many people had to have more in depth tests to diagnose Sarcoidosis e.g. MRI/CT/PET/Biopsies, and should I push for this? I'm about to see another rheumatologist in October as I'm feeling awful and not really coping with trying to work full time. The only thing that ever makes me feel better is being on high dose steroids. I have been 'diagnosed' with Fibromyalgia, but if that was the case why would my symptoms go away whilst on steroids and come back when tapering off them?
Any advice very gratefully recieved.
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