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Ran out of Calcichew

Posted , 3 users are following.

Tigz
Tigz

Ok, first post from me so please be patient!

CKD stage 5 (or so I think my records say) since January this year. No real warning or previous indication something wrong with kidneys up until then, so completely clueless about a lot of things that are going on with my body.  Been on dialysis for about 5 weeks now, bloods still not in a great state.  Ran out of Calcichew on Friday, re-ordered through GP and got wrong thing for second time.  Starting to get gassy burps and have had yucky feeling at back of throat since yesterday.  No breathlessness though. 

Could this be caused by not having taken the Calcichew?

Hoping to get some sorted either tomorrow or the day after.  Asked staff at dialysis today, but they didn't seem to think it was related.

What is scaring me, is this is the same feeling I had - although combined with breathlessness in each of the 2 times I ended up in hospital at the beginning of this year.

Any advice would be most appreciated.  Cheers

0 likes, 3 replies

3 Replies

  • MrsO-UK_Surrey
    MrsO-UK_Surrey Tigz

    Posted

    Tigz, I think it would be unusual for the symptoms you describe to be as a result of omitting calcichews for a few days.  You should mention it to your GP or consultant, especially as you are in the early days of dialysis - lots of good luck wishes for that.
  • helen54849
    helen54849 Tigz

    Posted

    Hi Tigz,

    Scary times isn't it.  First we get told we have end stage CKD then we just kind of get that straight in our heads then its on to dialysis.  Like Mrs O says the fact you have run out of calcichew is not making you have these symptoms.  Calcichew is a form of vit D so it helps strengthen your bones it wouldn't give you these symptoms.  Can I ask what type of dialysis you do? the reason I ask is because if you do peritoneal dialysis (PD) either AAPD or CAPD you can get heart burn as a result of the fluid sitting in your stomach while it is dwelling.  The neph can prescribe something for it so contact your neph, if they can't get you an appointment they should speak with you on the phone or the neph's secretary at the very least.  Next on to your bloods not being great, again I would be interested to know what type of dialysis you are on as it took me about 4 weeks before I started to feel better after I started dialysis (I do PD at home) and even then I needed some iron and EPO (I haven;t had eiher since the first lot so its good as I am holding my own).  I would expect your bloods to start improving from now on in, the only reason tey wouldn't is if you were not getting sufficient dialysis and this will be monitored by using your bloods and amended accordingly.  Please try not to worry this will make it worse, you have to try and by of the mind set that it is happening (and no its not nice) so make the best of it, you have to remember that 60 years ago there was no dialysis so we are lucky as we are still alive.  Let us know know how you get on and also tell me a bit more and I will be here to try and answer your questions if I can (I am not medically trained just slightly ahead of you on our journey so I have felt what you feel)It will get easier and once evrything settles you will feel better xx

  • Tigz
    Tigz

    Posted

    Thank you for the replies.  Everything is all new to me. Turns out to be other things beginning to go out of control.  Ok now.
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