Random dizzy spells, vertigo and out of body experiences when awake. What is going on?

I wish I could tell. Amazes me that we can put men on the moon, a rover on Mars, but NOT ONE doctor can give any of us relief from Vertigo and it's symptoms. I'm so sorry, but know you're not alone. 

 

Hi Liz! I know what you are saying about the leg thing! Drives me crazy makes it so hard for me to sleep! For me it helps if I have to weight on my legs.. Like a heavy Afghan or my French bulldog laying across my legs ... Almost like to hold them down to stop them from moving.. I have been told that this is a fairly common currents called RLS or restless leg syndrome... There are different things you can do for it like Medication and exercises ... And some people have great luck with that !!! Not sure how it might fit in with the rest of your symptoms tho... or mine... But look into our RLS and see if maybe you can find some relief there!

Sounds like migranes to me.  Google types of migranes and symptoms.  Topomax would be a likely drug if that is it.

Hi Liz,

I have had similar episodes, for me the vertigo trip started after i started after a heavy workout session, my ear started to hurt, still does sometimes, for the first month my vision was insanely blurry, i couldn’t recognize faces, the first time I got vertigo I thought I was getting a heart attack.

I tried blaming it on several factors like:

I quit smoking

Exercise

Damage to the inner or middle ear

Bad posture, pillow etc

Well it was horrendous, then after whining for over 2 months, I started exercising again, I know it sounds weird but I feel a lot better.

I do a lot of neck exercises, some yoga, cardio and I lift.

Try to stay active it helps a lot, especially if you have hurt your inner ear, or else it has to be something neurological.

All the best.

 

 

LOok up your local hospitals, find one that has. Neuro Otologiast mCheck his or her specialities, go back to your gp and tell them you want a referral to them, end of! theygo in  depth of vestibular problems and will tell you exactly what is going on, okay!

Liz I hope you've also had an MRI scan.  I hope you get some answers, have you been checked for B12, i'm going to ask to have mine done. 

Not saying that this is what you have but, all migraines do not include headache.  Your symptoms seem to mimic what I have researched about migraines with my VN issue though:

Silent migraine symptoms

People experiencing silent migraine may experience all the symptoms of a migraine attack without the head pain. Some of these symptoms include:

Speech disturbance

Migraine aura

Vision changes

Seeing flashes or flickering lights

Seeing zigzag lines or waves, also called fortification illusions

Seeing spots, stars, halos, circles, lines, shimmering, other shapes or colors

Blurry vision

Loss of vision

Cloudy vision

Other visual disturbances

Seeing three-dimensional effects

Seeing dark areas

Migraine sensory aura symptoms such as

Tingling or numbness

Feeling pins and needles

Odd sensations in a body part

Clumsiness or weakness in the limbs

Vertigo

Other symptoms

Amnesia

Confusion

Change in mood

Hearing loss

Vomiting

Abdominal pain

Because many of the symptoms of silent migraines are the same as the symptoms for stroke or a transient ischemic attack (TIA), sometimes called a mini-stroke, it is very important to see a medical professional immediately to diagnose the cause of the symptoms. Ruling out stroke and other more serious disorders is crucial since the typical migraine head pain is not present.

Hi Liz

Dont worry about the leg thing, they are all correct, its really common and its called RESTLESS LEG SYNDROME.  Youll have it for life.  Sometimes get it in my arms too.  Its nothing except annoying.  Regarding the other stuff, I also agree, I have silent migraine and have all that stuff.  You need to see a neurologist.  They will try to see if they can give you anti migraine medication.  Ive had this now for 2 1/2 years.  Its very debilatating.  I improved after botox at the Migraine surgery clinic in harley street london.  But the dizziness didnt go away.  This week Ive gone much worse as ive got a cold,  Ive not experienced that before.  My head is so dizzy today, all I can do is lie down.  They keep trying different medication some works a bit, other nothing at all but then we're all different.  Its very scary but youre not alone, theres a lot of us with it.  Dont see ENT they have no idea and I wasted a year a them.  Go and see your GP and get on the road to recovery. 

Google Depersonalization/Derealization 

Hey Liz,

I was experiencing the same out of body, dizzy spells as you mentioned. I am not sure about the leg or fuzzy objects but it could all be tied together. About 2 months ago I did 2 things and my dizziness and out of body feeling is GONE. I went to the doctor and they told me it was from anxiety. Who knew Anxiety could cause PHYSICAL symptoms. My doctor prescribed me some medicine (could take a couple different ones for you to find the one that works for you) and I PRAYED like crazy. After 10 days the feeling was gone. I attribute that 1st and foremost to God! Keep praying girl, and I will pray for you too and ask your doctor about anxiety. I promise, it can get better! 

I was thinking silent migraine. Migraine just acting out in a different way. Hope that helps.

Darling have any of the doctors you have seen asked do you have Ehlers-Danlos Syndrome. Do you feel faint or are do you actually faint? Do you feel dizzy, are you anxious, have you ever felt funny noises called tinnitus? Try NOT to worry, You may be absolutely normal but if you haven't been asked about Ehlers-Danlos EDS look up EDSUK JHSUK and POTS UK.