Random ‘good’ days and/or nights?

How did you finally get relief?  My arm below my shoulder hurts so much more than my shoulder at night.  I need help.  Thanks

Yes Debbie, my paid moves around all the time too..  One day is bicep, then clavicle, then forearm.  It is so weird.  So bizarre that there is no easy fix for this syndrome..  NO ONE, not even the pharmacist has  heard of it..    I went to Walgreens drug store yesterday to see if the pharmacist could recommend  something for the nerve pain.  She had no idea about FS.   So tired of explaining it to people. 

This whole thing is so crazy.   I took the 24 hour  anti inflammatory he gave me and it did absolutely nothing to help.  My bicep was back to killing me about 5 hours into it.  The thought that this may go on for a 2 year period is enough to make me insane and nobody seems to be able to come up with a solution.  Everything I have read makes me feel that there is nothing that will make this go away.  

How does anyone get any sleep?  The pain in my bicep gets worse at night.  Have tried every pill out there when I go to bed and I cannot get any rest because of arm pain.  I am almost sleeping (or trying to) sitting up but can’t say that helps a lot either.  A heating pad helps a tad but of course then I am super warm.  There is no winning at all with this FS.

Oy, been there Debbie, it is not fun. When you say ‘’every pill’ are you talking OTC or prescribed meds?  I went to my doctor last week, sobbing and begging for something stronger than T3s and she changed things up and put me on Celebrex for inflammation and Tramacet for pain. I have to say (fingers crossed) this combo does seem to be helping me. The pain isn’t completely gone, but I can sleep through it for a few hours at a time. Then when the ache and throbbing wakes me up (cause it always does eventually) I put a cold wheat bag on it. Cold works better for me than heat. Have you tried that?  

The nerve pain is what drives you batty. It just doesn’t relent!  I did try CBD oil (medical weed) but I can’t say it did much for me. Ice, Celebrex and Tramacet seem to be a combo that is helping me right now. Or, I’m moving past the freezing stage - I am not 100% sure. FS is a mystery! 

I don’t know. I can’t sleep either. Monica has done nothing. The took Celebrex of the market in the US.

 I was scheduled for MUA Now my primary and secondary insurance are arguing on who’s going to not pay for it I may have to start all over with a new orthopedic surgeon what a waste of time and money. An now my primary and secondary insurance are arguing on who’s going to not pay for I may have to start all over with a new orthopedic surgeon what a waste of time and money.

 If  I and up having to see another orthopedic is he going to put me through months and months of physical therapy ...

 I’ve been on the phone for hours with these insurance companies so much for being double insured. 

 Back to the subject last night I took two Benadryl, three amitriptyline 25 mg and a dose of NyQuil   I think I finally fell asleep at midnight I still woke up about every hour. I really don’t think that is safe but I was up the entire night before just need sleep.

 Nobody gives a s**t FS is more than shoulder-  they don’t feel the burning pain from your scalp down your neck to shoulder blades to your flank in your biceps, forearms to fingers. You sometimes don’t think  straight . 

Thanks for the Rank 

Hi Leya.....  OMG...that is one of my complaints.......I tell everyone..  I cannot think straight with all the pain I have.     I've had non stop pain now for 3 months...   Literally going out of my mind.  I cry every single day...  It is so depressing.    Looking into going to Canada for a procedure with Dr. Allen Oolo Austin..  Look him up if you have time.  Not sure if my insurance will cover it though.  I live in Connecticut.   They should because it's only $7,500.   They would pay if my doc here wanted to do full blown surgery on me and that would be about $25,000.  The procedure in Canada in not surgical.   The never pain is the worst..... from my elbow to my finger tips.. Although it moves around alot.. One day my back hurts, then the shoulder socket, then the bicep, forearm.  It truly is a nightmare.   How can they do a heart transplant or cure Polio but the cant fix frozen shoulder!  WTF.

Nice to see a note that gives some hope.  I wish I understood the pain levels of the stages as the ortho doc never told me what phase I was in.  I called yesterday to find out and they haven't heard back from them.  Geez, now I am mad at this doctor's office on top of it all.   I just tried a pain patch but not sure if that is helping any.  It is the nighttime that is the hardest part for sure.  

 

There's also roll on pain relievers too. I tried 3-4 different ones; find the one that works best for you. Night time was definitely tough. I got through it with sleeping pills, but I do remember waking up, sitting straight up, grabbing my arm and just crying in the middle of the night.... too many times to count. Its such a tough ailment because no one around you can commiserate. They don't understand. And, it takes so ridiculously long to heal. Its really unbearable for quite some time. And, unless the doctor has been through it they don't get it.

Stay strong. One day and night at a time.

You really hit the nail on the head with all of your comments.  It is crazy that this lasts so long for sure and I can't tell you how many times I grab my arm.   It isn't even the shoulder that I grab but my bicep.  Sometimes the clavicle.  Boy for someone who never heard of this FS I am sure getting to be an expert.  The doctors should be experts too but as you said, they can't know what it is like until they go through it.