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i have no idea if anyone will be able to help but i could do with the space to let off steam anyway.
i have a whole host of symptoms that i have been struggling with.
Due to long standing mental illness, much of it is always put down to physical manifestations of mental health problems.
however, it has been several years and nothing is improving, but much is deteriorating.
a friends parent (who is a physio) suggested many of my symptoms correlate with Ehlers Danlos (sorry if spelt wrong). however, on searching, much if it seems to be mainly based of flexibility/double jointed - ness?
i dont have this. i have certain things which are more mobile - some fingers can bend further, i can reach the wrist with thumbs etc, and I have recurrent dislocation of a few joints but that is it on the hypermobility side of things.
however i have a list as long as my arm of other symptoms - which looking up EDS/POTS/CCI/MCAD all seem to ft somewhere in amongst it... including digestive, bladder, blood presure, heart rate, scarring etc etc etc
i was previously dianosed with Functional Neurological Disorder but the more i research the more i feel there is much more to it and (considering i hardly had any tests) feel it was the easy diagnosis rather than the correct one.
i am obsese and in the midle of losing weight - difficult with so many symptoms but im getting there. between this and having a history of mental illness im sure ill be dismissed (again!).
has anyone got any advice of the avenues they persued or what helped them on a route to diagnosis (not just EDS but an diagnosis that they struggled to get)?
exhausted & fed up
thanks for taking the time to read.
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