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I read a magazine article years ago about a rare thyroid disorder where you have the low body temp and truncal obesity as the two factors that stand out, but it did not give the name of the condition, or the tests needed. I have had periodic episodes over the last few years where my diastolic BP shot way up and I have genetic high cholesterol. One ER visit years ago the blood tests came back positive for hypo thyroid and I finally got meds, which helped the weakness and fatigue I was having. However, had to stop due to me having a low cortisol test result and then having to get it checked later when I got home from the big hospital. Have not been able to get back on the Euthyroid since then. Last blood the doc did was for T4, which she said was normal. I am a government, or state hospital patient in South Africa with no private medical insurance, so I am up the creek without a paddle. I am going to have a stroke, or my kidneys will fail first, but I am only 50 and a care giver to my mom with major memory issues, so I need to get a proper diagnosis. I can live with all the other symptoms, but I am determined to find out what is going on. Any ideas what this condition can be folks? I was born with the fat starting from my knees up and my elbows up. I have no upper arm strength, so hanging curtains is a nightmare. I never sweat and if my temp is 37 deg celcius, I am sick. Over 9 days in hosptal for my rare neuro condition - IHH, it was mostly 35, 36 three times and once 37. The ward doctor simply did not believe it! I am desperate for any kind of lead, thyroid doctor, panel, or other way of finding out what tests I need to have done. Thank you folks. Praying for a miracle here.
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