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I was diagnosed with LS about 3-4 years ago. However I have many other health problems largely to do with the immue system. I have been going through really bad flare up with LS and notice that the vulva is completely red and raw, and its very painful. I went to my GP last week feeling a bit of a fraud as it had improved since making my appointment however when she looked she said "oh thats not good I shall refer you back to the hospital, she asked if I was ever followed up after diagnosis and basically I was diagnosed and discharged at the same time.
I use Beneovate and also Cetrabren but sometimes even that is so painful. I do feel its also spread to the anal area which the GP said its going in that direction but not too bad at the moment just near the edge of the anus.
My question is should we be followed up by anyone, I was always moaning to my last GP ( whose looked after me for 34 years and reired last year) about the flare ups but as I have so many other health issues that seemed to be something that always lower on my list of priorities. I feel at least when I mentioned it to the new lady GP she said she'll look at it and her reacion was quite she was quite shocked I thought it was quite good, which to me it was that day! She also commeted that LS is one disease she prays she never gets, so she clearly understands how it can affect people who have it which I found quite comforting.
How do others in this forum manage with so much soreness and pain, do many other people in this forum suffer with inflammatory arthirtus or sjorgrens syndrome to which I also suffer along with chronic pain ME (14years dx) and fibroymyalgia (33 years DX) I have been unable to work for 14 years lost a really good job and am highly unlikely to ever be well enough to return to the labour market although I remain a very positive person despite all this. But I know I am not coping well at the moment due to a lot of pain and discomfort. And thought that reading some posts from here may help me see how others deal with it all.
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