Raynaud's and Nifedapine
Posted , 3 users are following.
After suffering for more years than I care to remember I have suffered with Raynaud's. The worst thing was the chilblains lasting from October until May. This year I had a chilblain on my toe last week. I have all the usual symptoms ie white numb fingers. I finally got to speak to my GP about it as I've always worried they thought I was wasting their time. I was prescribed Nifedapine 3 days ago and in that short time the difference is noticeable. My feet and hands are warm and the chilblain has almost disappeared. Has anyone else had a similar experience? More importantly has anyone had Nifedapine prescribed only to find after a while it isn't effective?
0 likes, 3 replies
jenny Jan999
Posted
Hi Jenny again.
I was offered this before being admitted for flolan infusions, but declined it as it is apprently used to treat Blood pressure and I was having a terrible time with side effects from all the ones I tried. It was deemed safer for me to be under surveillance while they tried it out on me, but would rather have been at home.good luck and so glad the chilblains are going.
Jan999 jenny
Posted
janice43008 Jan999
Posted
I take an over-the-counter supplement that has almost cured my raynaud's disease (with no dizziness or other side affects) and I have severe raynaud's...I used to get red sores from my fingers and toes not getting blood circulation during the attacks. I take one 50 mg capsure of Petadolex (that's the brand name for butterbur.) Many people use butterbur to reduce or eliminate migraines (which I also suffer from and was the reason I tried taking Petadolex in the first place). Petadolex hasn't helped my migraines one bit, but has almost eliminated my raynaud's attacks!! Perhaps it will help with your raynaud's as well. I wish you the best of luck.
Sincerely,
Janice