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13 Replies

  • elizabeth58460
    elizabeth58460 Bettebet

    Posted

    Hi Bettebet, I'd like to know how they diagnosed Raynauds, as I get frozen finger and toes, and I wonder if that is any connected to my Atheroma.
    • Bettebet
      Bettebet elizabeth58460

      Posted

      Hi Elizabeth

      I was diagnosied by my symptoms. Fingers turn a yellowish shade of white .  Sometiems blackish purple.

       And it is really painful when blood returns in to the fingers. Can happen in 60 degree weather or damp summer days too. Of course happens all the time in winter months.

    • elizabeth58460
      elizabeth58460 Bettebet

      Posted

      Hello Bettebet,Did it take a long time for your Dr to diagnose Raynauds, as when I tell my Dr she just says Hmm don't know what that is,and yes it is painful when the blood starts to come back to the fingers. so frustrating, taken into hospital on Thursday all the usual symptons for heart attack, blood tests done, all ok, so sent home.  last night, heart/pulse pumping like mad all over the place, lack of breath, they don't  seem to be able to give me any diagnoses to this.  any ideas?
    • Bettebet
      Bettebet elizabeth58460

      Posted

      Hi Elizabeth

      Show your Dr. Photos of your white hands.

      as fore heart pounding I do not know.

      Get another opinion from a Dr.

      Brooke

  • cher42845
    cher42845 Bettebet

    Posted

    www       merckmanual com  /professional/cardiovascular-disorders/peripheral-arterial-disorders/raynaud-syndrome

    Raynaud syndrome may accompany migraine headaches, variant angina, and pulmonary hypertension, suggesting that these disorders share a common vasospastic mechanism.

    • Bettebet
      Bettebet cher42845

      Posted

      Thank you for article. I have Raynauds for over 15 years.

      I have known of my PA 8 months.

  • julie01285
    julie01285 Bettebet

    Posted

    Hi,I was diagnosed with Raynauds causing severe cramps at night .Went everywhere to find explanation as had had a cardiac arrest [ MI] low pumping of oxygen Revived with an angioplasty However when read the side effects of statin[ simvastatin ] saw could cause so stopped and never had since over 5 yrs.Someone on a Forum suggested the microvascular [ Printzmetal angina & cardiac x & last week went to the Brompton re possible stem cell trial.

    The Doctors had been recording the mental for classic symptons found on Dukes Status.But the NHS needs hard firm evidence when often research is needed found only in tertiary sector .They are told not to refer to here. If you have a disability found after birth this too is not recognised ?!

    • Bettebet
      Bettebet julie01285

      Posted

      I had no idea that leg cramps could be a sign of printzmetal.

      Not sure what checking the mental refers to?

      I would love to get info on trials here in the USA.

    • Bettebet
      Bettebet

      Posted

      Also what is "Dukes Status " ?
  • julie01285
    julie01285 Bettebet

    Posted

    Duke Status Monitor, which have only just found,  is a form of self assessment ,suspect used by DLA  , as when filled it out shows up my problem due to functioning / mobility with breathing  which DLA reject as the average  tests don't always show if microvascular or interconnected with low thyroid ,CFS  etc .Suspect MRIs maybe needed but if read by technicians on a remit  so urgency goes out of the window  as I found with agallbladder & sediment .It was ignored.
  • julie01285
    julie01285 Bettebet

    Posted

    Have you looked into vasculitus/ lupus  .Many doing research are vascular specialists.Many hospital specialists are dictated to by the admin [ remits]  who know they no longer take a hippocratic oath.
    • elizabeth58460
      elizabeth58460 julie01285

      Posted

      Amazing, for at least a couple of years I have told my Doctor about white finger,painful, strange feeling of numbness and cramp in my toes on left hand and left leg,then I went to a different doctor he mentioned Raynauds disease suggested I had surgical socks as my ankles swell, so went yesterday to have surgical stockings fitted by nurse, she recognised me from having a Doppler test, and said that as the reading of the blood flow in my legs was very low 0.05, lowest should not be lower than 0.08. she said it would be detrimental to have the stockings fitted they would cause more problems, and definitely not to be recommended for me, and go back to my Doctor and tell her I am still having problems with my toes and finger. Hmmm I don't think so, no help there!!!
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