13 Replies

  • Posted

    Hi Bettebet, I'd like to know how they diagnosed Raynauds, as I get frozen finger and toes, and I wonder if that is any connected to my Atheroma.
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  • Posted

    Hi,I was diagnosed with Raynauds causing severe cramps at night .Went everywhere to find explanation as had had a cardiac arrest [ MI] low pumping of oxygen Revived with an angioplasty However when read the side effects of statin[ simvastatin ] saw could cause so stopped and never had since over 5 yrs.Someone on a Forum suggested the microvascular [ Printzmetal angina & cardiac x & last week went to the Brompton re possible stem cell trial.

    The Doctors had been recording the mental for classic symptons found on Dukes Status.But the NHS needs hard firm evidence when often research is needed found only in tertiary sector .They are told not to refer to here. If you have a disability found after birth this too is not recognised ?!

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  • Posted

    Duke Status Monitor, which have only just found,  is a form of self assessment ,suspect used by DLA  , as when filled it out shows up my problem due to functioning / mobility with breathing  which DLA reject as the average  tests don't always show if microvascular or interconnected with low thyroid ,CFS  etc .Suspect MRIs maybe needed but if read by technicians on a remit  so urgency goes out of the window  as I found with agallbladder & sediment .It was ignored.
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  • Posted

    Have you looked into vasculitus/ lupus  .Many doing research are vascular specialists.Many hospital specialists are dictated to by the admin [ remits]  who know they no longer take a hippocratic oath.
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    • Posted

      Amazing, for at least a couple of years I have told my Doctor about white finger,painful, strange feeling of numbness and cramp in my toes on left hand and left leg,then I went to a different doctor he mentioned Raynauds disease suggested I had surgical socks as my ankles swell, so went yesterday to have surgical stockings fitted by nurse, she recognised me from having a Doppler test, and said that as the reading of the blood flow in my legs was very low 0.05, lowest should not be lower than 0.08. she said it would be detrimental to have the stockings fitted they would cause more problems, and definitely not to be recommended for me, and go back to my Doctor and tell her I am still having problems with my toes and finger. Hmmm I don't think so, no help there!!!
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