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Re Parkinsons Parkinsonism!

Posted , 3 users are following.

oldtyke
oldtyke

I was diagnosed with Parkinsonism back in 2010.

From problems going back to 1999 after a few weeks on Prozac which caused severe problems.

There have been no investigations for Parkinsons, just a diagnosis through tremor and feeling unwell and walking difficulties.

A ten minute consultation with a neurologist to start with. Now, since last May two follow up consultations, lasting all of five minutes.

My last consultation, I reiterated it was the Prozac that has caused this problem.

The consultant said ''well, we won't go down that road again.''

meaning, they don't want to know.

Next appointment to go back next May 2012, with Instructions to keep taking the medication.

Madopar 125mgm three times a day.

In fact makes me sickly, so have reduced it to twice daily with better effect.

My best way of coping with it is to ignore it.

I can't in all honesty say I have much faith in the Dr's or my GP.

It may not go away, but by hell it is not going to spoil my life.

1 like, 4 replies

4 Replies

  • jacques40207
    jacques40207

    Posted

    I love your optimism oldtyke. Don't get me wrong, I like Michael Parkinson but he doesn't deserve to have a disease named after him. i would prefer if it was named after Princess Di. She was my favourite ever of the royals! Maybe they could name it after you - oldtykes Disease! You deserve it way better than Michael Parkinson.
  • singingsnail
    singingsnail

    Posted

    Hello - I'm a Parkinson's disease specialist nurse and a mental health nurse. you were diagnosed with parkinsonism from the Prozac - that's a symptom. But Parkinson's Disease, which is a disease needs a lot of explaining. You can find the information you need by visiting Parkinsons UK online. Much more could be done to help you - i think Parkinson UK probably funds a specialist nurse in your area, as they fundthe NHS to employ me. Please ask your GP for a referral, or refer yourself, if that isthe system near you. The nurse will be able to review your medication and symptoms and probably prescribe new drugs for you, or arrange another neurology appointment. Nobody with Parkinsons disease should be left without support for themselves. Its an amazingly complex set of conditions. Good luck - and don't accept that nothing more can be done, It can.
  • oldtyke
    oldtyke

    Posted

    Thankyou for your response my last post was in 2011 so it is rather out of date.

    I was not diagnosed with PD from the Prozac that has been discounted by numerous doctors

    they refuse to discuss the issue anyway.

    Also one can very quickly be labelled as a Psychiatric case if you make too much noise about anything.

    I am as sane as any of the doctors I see.

    I have had other medications since but I just now take the Madopar and coconut oil capsules.

    I stopped neupro patches as they were making me go to sleep.

    I dont feel any worse without them.

    Often things are easier said than done. My last visit to the GP in June was because I been asked to go by

    the PD nurse. I explained the problems I was having as I had told the PD nurse who suggetsed a blood test

    After a long explanation to the GP she said ''Yes, but what can we do for you today?''

    She did eventually arrange a blood test as instructed by the PD nurse.

    I waited a few weeks and had to go in to have a BP check.

    I casually asked if the results of the blood test had come through. They had

    but the blood test was not the one done as had been asked for ( i.e.check vit D levels)

    I do think it depends who you are and if ones face fits with doctors.

    My Neurologist sent a letter to my GP after the first consultation which I saw. He was more eager to make

    judgement of me than a diagnosis. He apparently called me an ''odd chap'' If that is not a judgement?

    To be honest I'd rather go have my teeth drilled without anasthetic than go to the doctors.

  • isabel27797
    isabel27797 oldtyke

    Posted

    Hello oldtyke

    Find your Parkinson nurse in your area and ask her to recommend another consultant,then see your GP for a referral.

    I wasn't happy with my consultant as I had the same treatment as you,perhaps we had the same one!!!

    I have found my PD nurse the best source of help,GP's are ok but they don't know enough about the disease.

    I now have a new consultant and feel more confident about my treatment.

    I ignore the disease as much as I can and live life to the full.Good luck there is help out there.

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