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Reaction to Clob?

Posted , 14 users are following.

jpong
jpong

Hey Everyone, just a question that many of you have probably heard before. I've been on Clob for 8 days. Diagnosed with LS just recently. 1st couple days horrible burning. I know that is one side affect, but when you already have burning, more on top of it is unbearable! Day 5 I felt much better, than day 6 holy cow..... horrible burning and inflammation, redness, like before I was on it. I keep using it thinking maybe it will go away, but at this point I'm beside myself! Didn't call the doctor because

I was trying to stick it out go back in a week to see her. Should I stop using the Clob? I just want

something to work. Been on so many different things! Taking Tylenol around the clock because I'm miserable! Any thoughts?

0 likes, 23 replies

23 Replies

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  • Guest
    Guest jpong

    Posted

    Jpong

    So sorry you're having such a hard time! The Clob or any steroids job is to halt inflammation enough so our bodies start to heal. I'm not a doctor and wouldn't want to mislead you in any way so I will just offer a suggestion. If you are not getting relief from the Clob, please stop for now. It sounds as if it may be too strong for you and there are other steroids in different classes that can be effective. I personally do not use it and find it burned more than helped. Until you can get back to your doctor I think trying to soothe your inflammation with things like oatmeal baths and plain olive oil would be more beneficial at this point. Take a look at your diet also. Anything with sugars even bread can make inflammation worse. I am a vegetarian and even though you might not want to go drastic, be aware that processed food could worsen your condition. I feel like what we put in our bodies is so important to our overall well being. Before you begin any supplements and vitamins it would be advised to discuss this with your doctor first. I hope you find healing soon and wish you best!!😗😘😁

    Y

    • jpong
      jpong Guest

      Posted

      Yes, I'm definitely more inflammed and red and burning! I didnt use it today because my husband and I had a small trip planned for the day and I just didn't want to be more miserable than I already am! I agree about food for sure! I have been sugar free for 1 1/2 years now. But, I'm starting a gluten free diet now to see if that will help.

    • Guest
      Guest jpong

      Posted

      Yes, the sugar is everywhere and almost in everything! I only use castor/lavendar/coconut oil mix to keep everything at bay. With healthier eating and this mix, no flares in 6 months. Best to you!!
  • yvonne_20875
    yvonne_20875 jpong

    Posted

    Hi. I asked the same question and didn’t get a reply plus I’m burning on inner thighs and groin area too. I think it was the steriod so stopped it. Burning was unbearable and dr couldn’t help just put me on waiting list for dermatology. I finally got some relief with organic coconut oil and anti inflammatories. Read earlier about bicarbonate of soda and water spray. Sound like that helped others. Hope we get more good advice soon . 
    • jpong
      jpong yvonne_20875

      Posted

      Hi Yvonne, what kind of anti inflammatories? I'm assuming that was a prescription? I just started taking the sitz baths with the bicarbonate. It's soothing while I'm in it, but still having the burning and irritation but I think it's starting to calm down a bit since stopping the Clob. I have to call doc tomorrow. Don't have appt. until next Monday. Hopefully I can get in sooner. Prayers!!

    • Guest
      Guest jpong

      Posted

      Anti-inflammatory medicine can be ibuprofen bought at any drugstore to help with the pain until you begin to heal!
  • cleo15
    cleo15 jpong

    Posted

    Hi, I'm a newcomer here too. I'm quite sure I've had this condition for a long time. I was diagnosed with LS last year and prescribed Clob. my LS settled down and that was great, but it didnt last and when the next flareup happened I thought all I had to do was start Clob treatment again. This time it made no difference at all, I was bleeding from a lesion and had a white patch of scaly skin.Squirmy itch and pain. It was awful.

    I was reading the guys posts on here and was delighted to read that Clob is only one treatment for this awful complaint.

    I bought castor oil, essential oils -  lavender and frankincense and made a potion with them and started applying religiously three times a day and after passing water. I can only say that its working!  The lesion has stopped bleeding and it doesn't feel as if I'm sitting on broken glass,the itch has become bearable, the white patch is still there but not stinging.

    Would you not try something similar until you can see your doc? We all know how you are feeling and it's awful for you.

    • Guest
      Guest cleo15

      Posted

      I'm glad you found some relief! I have been flare free with the use of essential oils...lavendar, castor, coconut ....i count believe the relief! I've also found witch hazel worked wonders for one itchy spot that i had which is now gone! Some things work for some and not others but you are in the right place for some great advice and healing methods!

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