reactive arthritis

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I was diagnosed with reactive arthritis 2 months ago after a bowel infection (food poisoning during chrstmas holiday in egypt) I thought ReA was supposed to clear up between 3 and 12 months, by the looks of things it doesn't.

Inflammation first started in my heel then big toes, both knees, slightly in fingers and now top of neck, giving me awful head pain and numb arm wen wake up.

Iv'e had 3 steriod injections which give you false hope as the pain goes only to coe back in about 3 days.

I take 3 diclofenac a day

1 tablet to minimise bleeding due to diclofenac

4 Sulfasalazine (started 1 a day increased to 4 over a month) only been on sulf a 5 weeks, no side effects but no ease of pain yet.

I take upto 8 tramadol a day for pain, these stop the pain but are very strong they make me really dizzy and I find it hard to sleep.

Is there anyone out here whos symptoms of ReA have gone, need lots of hope.

I have been sick from work for almost 3 months, I'm a 32 year old teacher and find it impossible to teach at moment with pain or feeling I get from painkillers. I was a fitness fanatic too, went to the gym 5 times a week loved it, I haven't been able to go for 3 months, really frustrating, I really want to hear from someone with hope please.

I am HLAB27 positive and my protein levels are around 150 but have been as high as 190.

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    i am 36 yrs old with 3 children under 5. i was diagnosed last sept (2006) with rea. with in a week i was bed bound usind a commode and in terrible pain. my gp did his best with what he could prescribe lots of painkillers of which i took too many of but the pain was like walking on broken hot glass. the hosp took alot of persuading that i was actually ill but finally i was taken seriously. 1 steroid jab and 5 months on steroids and now on methotrexate i have put on nearly 3 stone which doesnt help, i have it in my left hand and both feet and left ankle.i have also got strange red blotches over my feet and ankles which can be tender at times, the hosp have no clue what started it but i have put it down to tonsilitus which i had both times prior to the flare up of rea. i have started riding a bicycle as this is easier than walking and doesnt take me too long to take kids to school as trying not to rely on car. i am slowly getting better but i have good and bad days. i did have this about 15 yrs ago (undiagnosed) but nowhere near as severe but then again i was younger and fitter then. i hope this will get better but at the moment i feel like an old women trying to look after my young family. i just keep going even if slowly.
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  • Posted

    Don't worry things will get better!

    Like you, I got reactive arthritis from food poisioning when I was only 20 (I am 29 now)

    I had many, many joints affected (knees, ankles, wrists, jaw etc) and ended up in hospital for a few weeks. Was treated with painkillers, anti-inflammatories, sulphasalazine, steriod injections.

    The worst of the pain went within about 4 months, but I was actually unwell for about a year in total (remaining aches, severe fatigue) and had to have time out of university.

    I made a good recovery, although I was left with joint damage/some restricted movement in my right hand. I felt actually quite lucky this was the only damage, as people with a permanent arthritis have to deal with so much more ongoing pain/damage.

    I found cod liver oil taken daily to be really helpful, as well as sticking to a very good diet (no processed foods) and lots of sleep.

    I have for the most part been well since then, but I have had other (not as severe) flare-ups of reactive arthritis (cause unknown) from time to time. I am currently suffering with some knee, wrist and jaw pain. Although it is uncomfortable, I have not had anything that has restricted my everyday life too much and I do not take permanent medication, just when I need it.

    All my research has shown people with reactive arthritis in most cases do get better within a few months from flare-ups, so try to stay patient and keep positive..... x

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  • Posted

    Meant to say, my message is for Brella....
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  • Posted

    Hey Brella,

    My reactive arthritis came from Clamidya and was mainly in my left knee - took them ages to diagnose, and in the meantime my knee was swollen beyond recognition, however, after a course of antibiotics, to clear up the Clamidya, the swelling and pain decreased and I was active and walking again within 6 weeks. I too am fit and active so understand how awful it is not to be able to go the gym. I have a history of arthritis in my family so know how dehabilitating it can be. Keep positive and good luck x

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    • Posted

      Hi Josie...hope u will be doing good....

      Just wanted to tell you that even I m experiencing similar symptoms and I doubt it's becox of STD...

      Could u please update us abt your health status?

      Tc

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  • Posted

    [quote:5b24e8b0e3=\"tracy\"]i am 36 yrs old with 3 children under 5. i was diagnosed last sept (2006) with rea. with in a week i was bed bound usind a commode and in terrible pain. my gp did his best with what he could prescribe lots of painkillers of which i took too many of but the pain was like walking on broken hot glass. the hosp took alot of persuading that i was actually ill but finally i was taken seriously. 1 steroid jab and 5 months on steroids and now on methotrexate i have put on nearly 3 stone which doesnt help, i have it in my left hand and both feet and left ankle.i have also got strange red blotches over my feet and ankles which can be tender at times, the hosp have no clue what started it but i have put it down to tonsilitus which i had both times prior to the flare up of rea. i have started riding a bicycle as this is easier than walking and doesnt take me too long to take kids to school as trying not to rely on car. i am slowly getting better but i have good and bad days. i did have this about 15 yrs ago (undiagnosed) but nowhere near as severe but then again i was younger and fitter then. i hope this will get better but at the moment i feel like an old women trying to look after my young family. i just keep going even if slowly.[/quote:5b24e8b0e3] :wink: :wink: [b:5b24e8b0e3][/b:5b24e8b0e3]
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