Really bad pain 5 months out

These are the things that drive everyone a little crazy. It may be you are overdoing it and trying to move to fast. Take a few days off from all major activity. Then start slowly found leg lifts and then ice, elevate and do the other things including increasing you hydration a lot. When you walk, walk slowly, touching your heel, toe and bend while using the full stride. Rest more than usual but continue the basic exercises. Get back on pain meds if your Dr allows and add antiinflammatories. This may take time so don't try and rush things.

I had TKR Dec 2015. Therapist manually bent my knee and I have been in pain to the point I could not out weight on the knee. Burning and swelling and it would literally be hot like fire. Orthopedic doctor told me he did not like follow ups, like I did. So just tonight I searched on the Internet and came across a video that help with stretching the IT band. My leg was stiff and hurt like heck. Omg, it worked. My leg had been hurting from the mid thigh to the outside of my knee so bad. Even at times the hip hurt. This exercise has at lease cut down on some of the pain in one day. All this time, and my doctor refused to send me back to therapy so I had to seek for answers myself. And he thinks I'm going to let him operate on the other knee. I don't think so. Hope this give you some kind of hope. I was better off not having the surgery. Oh well, I'm determined to beat this monster.

Doesn't sound right. Did you stick to a lot of rehabilitation physical therapy earlier on, i.e. does your PT think it is soft tissue related?

I'm at 4 months and if I overdo it my knee will hurt like heck in some of the weirdest places.  Make sure you ice and elevate and by elevation not a recliner but have your leg high above your heart.  Swelling really wreaks havoc on the knee.  I can just imagine the arguments the joint has when there's not enough room in the joint because of swelling.  "Hey move over, your on my side of the knee.  well, you started it, give me some room, will ya". I imagine the voices sound like Our Gang.  

Hang in there and listen to the advice from this board, things could turn around for the better very quickly.  

If you're limping and either threw your back out of alignment or locked your SI (sacroiliac) joints, you could be experiencing some sciatica if the pain is shooting down your leg.  I encountered it at 5 weeks post-op; took a chiropractor about 3-4 weeks to make it all go away.

You're still less than 6 months out so some swelling can still occur if you overwork the knee on any given day...same for the pain.  If you are NOT overstressing the knee, then, yes, it's unusual to have that level of pain 5 months post-op.  Unusually but not unheard of.

Eight months post-op, I developed severe sciatica down BOTH legs.  Turned out to be spinal stenosis at L2/L3.  Put an end to my rehab and didn't have the fusion to fix it for almost 5 months.  Now, I'm 3 months post-spine fusion and only getting back to rehabbing my knee.  See?  All sorts of crazy things can happen...

Least invasive: See a chiro and discover if the pain is as simple as an SI/alignment issue.  I say this because it's unusual for the new knee to give you pain of that level this many months later from hip to foot.  Worst case: bone spur or impingement of the sciatic nerve at L4/L5 requiring a laminectomy to fix it. (Yeah...had one of those too...)

Again, if this is hip to foot pain, I'd look at the sciatic nerve and what's pinching, impinging, or irritating it.  Just may not be the knee...especially if your ortho sees nothing wrong on an x-ray and MRI.

Update... the swelling has gotten worse as has the pain. I talked to my surgeon's nurse yesterday who is now concerned about a possible blood clot due to the severe swelling.. as well as possible other issues due to the pain.. So fortunately my surgeon is squeezing me in Monday AM before seeing his other patients. She told me to go straight to the ER if any clot symptoms arise. So over this!!

Thanks for all of your responses! I appreciate it!