Really bad pain from stomach through to back takes breath away and have nausea with shingles

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Hi all

I have shingles and also a uterine infection. Started with flu like sore throat, then stabbing back pain for a few weeks followed by the rash a few days ago. I have fibromyalgia and chronic fatigue which has been under control for a few years now with meds and not overdoing things although i work full time. Today i am finding the pain in stomach through to back where my shingles belt lies pretty unbearable. Im on antibiotics and gabapentin and codeine phosphate but if didnt have the radh i would be in a&e now as feels really bad. 😰 does anyone elses have fibro and such pain? Or am i being a woose!

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  • Posted

    hi eve sorry to hear you are dealing with all of this. i have fibro too but i must say that shingles gives me the most intense uterine cramps. even if the rash is not around my abdominal area , the pain feels like child birth . the only thing that helps me is rest and thc edibles for the pain.

    may i ask if they diagnosed the uterine infection first?

    SENDING HUGS FROM CANADA ! youre no woos ! YOURE STRONG! but shingles suck

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    • Posted

      Hi Katie

      Thank you so much for replying. Yes they did urine test and then called me back for antibiotics. I was researching the antibiotic and kidney infection and noticed it mentioned shingles. I had noticed id been sore and itchy, thought soreness was kidneys as pain was in my back and bladder apendix area. I looked more at my rash and hadnt realised how much of it there was, just like a belt from just under bellybutton to around just under back ribs and really sore to touch. So phoned doctor who asked me to go into clinic and he said definitely shingles and that was causing the pain and not the water infection. I have 4 children and agree it is like child birth Labour pains! They are geting worse not better even with medication! Sorry you have fibro, thats just not fair is it! Thanks for the hugs and sending hugs over the sea to you from Wales uk. X

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    • Posted

      hi eve hope you are doing okay. i thought i would mention something i came across shortly after my first diagnosis of shingles (originally diagnosed with UTI and pneumonia so i am fully aware of how often patients are first diagnosed with suspected uti as you could have been running a low grade fever and they thought the pain was due to urinary tract, kidneys or uterine in your case.

      https://www.livestrong.com/article/212169-bladder-symptoms-from-shingles/

      it discusses the relation of shingles and the bladder and what can result. i generally suffer from urinary symtoms during shingles (feels like a uti, drink a ton of water barely feel the urge to go, last night i almost peed myself as i had drank 2 litres of fluid in the morning for a renal ultrasound, but it didnt make its way to my bladder until the evening!) that was a new low for me, living in my pjs, struggling as a single parent with chronic illnesses.

      just want you to know, youre not alone , its unfair and you dont deserve the suffering- in fact none of us do! IF SHINGLES COULD BE CURED OR DIDNT EXIST AT ALL, it would save alot of suffering! HUGS TO YOU IN WALES FROM CANADA

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  • Posted

    sorry you are suffering with the combination of the physical illness it is apparent that rest is important and sometimes hard to accept. this too will pass.

    i can sympathize with you . many issues cannot be controlled to give us the results we expect or need to live in peace. trying to eliminate stress and just walking is good.. DAILY RELAXING TECHNIQUES HAS HELPED ME AND GIVEN ME A LOT OF PEACE.

    maybe ask for a blood test it may be vit d or b issues. be mindful and practice adjusting to and accepting limitations. keep a journal of what helps. find things that make you feel better if animals, hobbies, gardening , light exercises,movies, whatever is distracting can help bring adrenaline levels up which in turn brings a better outcome. eating right is a biggie . its a lifestyle change in many ways but important to adjust to life in different stages. life in stages with a positive attitude is the best way to alleviate stress one day one step at a time. it takes time to find what works best for everyone is different.

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  • Posted

    Docs call the nerve pain "hell's fire!" You are not a wus! !

    I tried every OTC pain remedy at CVS. Plus 700 mg Gabapentin a day. I bought an Omron TENS unit from online WalMart. That helped. I chilled blue gel packs and kept swapping out. Old fashioned Noxzema seemed to help most...found it at Target.

    Take 500mg l-Lysine TWICE a day...boost your immune system so it beats virus back into submission.

    The best thing? After 5weeks of PHNP i took doc's instructions seriously. I cancelled out of everything on Thursday. Went from recliner to bed and back. FOR SIX DAYS. Did NOTHING. Read and slept, lots of fluids. Woke up the next Wed and pain gone. GONE!!

    It took another 3weeks for energy to return for a normal schedule.

    I'm still VERY careful not to get over-tired. Or I feel the "burn."

    Rest is most important i decided. Baby yourself. No one else will.

    Hope you feel better soon.

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  • Posted

    After 2weeks of no sleep i read that CBD Oil enhances gabapentin when treating pain in dogs .. Same receptor sites. So did CBD under the tongue. That was 1st nite i slept all nite. Also used CBD salve. If pain had continued i would have applied for medical marijuana card. Friends said it helped them.

    i think rest helped more. I did cry once when i was alone, it just felt good to get the frustration out.

    i told doc it was worse than child birth, worse than kidney stones, worse than gall stones, (have had all 3) ..because the pain never stops.

    I hope it lessens for you soon.

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    • Posted

      wow, sounds so similar especially the kidney stones childbirth and gallstones ive had all three as well!

      Glad the cbd is helping you! I can only take micro doses of cbd because it becomes harder for the liver to breakdown when taking clobazam (or frisium i think its called in the US)

      sometimes i think we (the patients suffering with shingles) are more likely to find ways to manage chronic shingle flare ups than the doctors we see.

      i know im at a place where if someone told me i could rid myself of shingles forever by hopping on one foot while rubbing my tummy i would gladly do so just to see if it helps!

      Glad you were able to get some sleep as well!

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    • Posted

      Gosh you have been through a lot too x i have CBD take it for fibro with gabapentine and sertraline, doesnt seem to be helping much with shingles pain, feel like someone has punched me in the bag and right side at same time. Finished antibiotics yesterday so hopefully i will feel benefit really soon. Been resting and sleeping loads so fingers crossed and toes x thanks sylvia .

      Eve

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  • Posted

    Hello Eve, When I read your post I really felt a huge amount of compassion for you. What you are experiencing is a cruel & debilitating virus. You have every right to ask for some consideration from family, friends & work commitments. It is very important that you are able to rest without feeling guilty or stressed about it. Please look after yourself because shingles can cause long term pain. You are not alone Eve.

    Take care

    Michelle

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  • Posted

    Hello Eve, When I read your post I really felt a huge amount of compassion for you. What you are experiencing is a cruel & debilitating virus. You have every right to ask for some consideration from family, friends & work commitments. It is very important that you are able to rest without feeling guilty or stressed about it. Please look after yourself because shingles can cause long term pain. You are not alone Eve.

    Take care

    Michelle

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  • Posted

    Eve, ohhh how I feel for you!!! you certainly are not a woose!!! I had excruciating back pain prior to being diagnosed with Shingles... once I started the anti viral medication the pain eased enormously .... but I am still trying to work through this insidious disease!!

    Read and research this forum as it has a wealth of incredible information!! I only discovered it 3 weeks ago ...

    Change eating habits, avoid foods high in arginine/ eat foods high in lysine. ( google it)

    Drink a lot of water

    Eliminate nuts, grains, legumes, caffeine

    Addition of vitamins, Vit B12, Vit D, Lysine, Zinc. gain read the forum as vitamins vary.

    I have kept a food diary for the past 4 months as I have had a lot of nausea, this way I have worked out my food triggers.

    Acupuncture/ Laser therapy treatment. I proceeded with this as advised by a Doctor. It relieves pain, reduces the need for painkillers and speeds the healing. My back felt incredible!

    Have blood tests

    Daily light walk, even if only for 10min

    Rest, and watch movies!!!

    Thinking of you !! from Australia

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