Really getting me down now:(

Hi Sam,

I feel the same frustration. I went for an assessment at the CFS clinic near me yesterday (been waiting for soooo long so it was such a relief to finally see them)! Whilst they were lovely (Occupational Therapist and Psychologist) and they asked lots of questions to get a good idea about my daily struggle, I really didn't feel like there was much they could do for me!  They said they couldn't diagnose me themselves because they don't have a medical Dr on their team - they would have to write to my GP with their advice and she would have to diagnose me herself! But apparently most GPs 'ignore the letter from CFS clinics'!! Helpful.

They also said that because I suffer from depression as well, they might not even be able to disgnose me with CFS as a lot of the symptoms could be caused by the depression. 

I feel very deflated and kinf od like I've hit a brick wall.

Not much help to you I'm afraid, but at least you know you're not alone! I hope you feel better soon.

xxx

Hi I haven't got CFS but I care for my hubby who does. 

But I had this weird virus 2 weeks ago sore throat , nausea like billious , stomach pains and pains in back and shoulder , and felt odd anxious. When I got better found several friends had same symptoms ... Horrid little bug .. Lasted a few days . 

Hope you feel better soon ... 

And my hubby had a doctor at CFS / m.e clinic so got diagnosed ... Hope yours goes well ...xx

Hi. I am due to see a cfs specialist in January too but already have diagnosis. Going to gain support and advice. I can understand your frustration. This is a good place to winge as folks are great listeners and advisors. Wish you well

Well here's  my two pence worth again! Sam , I could have written almost word for word , your post, from the virus to the tiredness the foggy brain , the forgetting words ,  the lack of concentration the noise driving me to distraction and panic attacks ! I was told CFS just live with it , I did , suffered years and years  19 years later told no not CFS  !!! autoimmune disease attacking thyroid !!!!!! Thyroid slowly destroyed shrunken  inflamed !! Because TSH results come back normal doctors insist on going by blood tests not symptoms . It is worth checking with your doctor that you have been tested for hashimoto disease !!!! I can't believe how many sufferers have been misdiagnosed    and told ME/CFS when in fact They have an autoimmune  problem . This MAY not be you but I felt I had to put it in the mix . Good luck  good health 

if you have a virus it probably is an added problem which wont help you if it makes you more tired.  Once over this you will recover but it will depend on your body as to how quickly that occurs.

Richard

Sam you need tests for thyroglobulin antibodies and thyroid peroxidase antibodies . I take it you re not taking any medication for under active thyroid? Go to " I am hashimoto s a letter" does this sound like you? I only say this because I have had doctors bang fists on their desk , shout at me , call me stupid , shout theirs nothing wrong with you woman it's all in your head your just depressed!!!!  Doctors make mistakes they certainly did with me. You say your CFS appointment isn't till January , in the mean time you are feeling so poorly you just need an answer and treatment and to feel well again . It is surely worth looking in to after all ME/CFS is only "diagnosed " after all tests with similar symptoms have been checked out and normal results found ! I hope you feel well soon .