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Really high IGA results

Posted , 3 users are following.

jodie11659
jodie11659

I've just had my IGA blood results back as 250 were anyone else's this high as I know your positive above 10 rolleyes

1 like, 11 replies

11 Replies

  • Jayney84
    Jayney84 jodie11659

    Posted

    I have high IgA levels but the rest of my coeliac bloods were normal. The tissue transglutaminase was negative. I have no idea what it means sad
  • antpring
    antpring jodie11659

    Posted

    Hi not sure whether IGA is the same as tissue transglutaminase - but my 8 year old had a score of >300 and something called  HLA typing confirming DQ8 positive??

    She is definitely Coeliac's

    • jodie11659
      jodie11659 antpring

      Posted

      Iga is the transglutaminase, then they tested me for endomysial antibodies which were positive. I'm still waiting for my biopsy results. 😐
    • jodie11659
      jodie11659 antpring

      Posted

      Me too, it's such a waiting game. I'm not eating gluten now anyway, I couldn't cope to eat gluten another day.
  • Jayney84
    Jayney84 jodie11659

    Posted

    I went to the docs today and he said that even tho my IgA is raised (5.29 and should be below 4.50) because the tranaglutaminase is negative he said I don't have coeliac and to stop thinking about it. It's all confusing sad he said low IgA means coeliac but I know high can also mean coeliac.

    Hope your biopsy went ok smile

    • jodie11659
      jodie11659 Jayney84

      Posted

      It can be both low and high, my transglutaminase levels were above high reference limit and I tested positive for endomysial antibodies, hence biopsy to confirm.

      I haven't had results yet, it was awful, I didnt have sedation and was sick, they said possible scalloping in d2 part of intestine, which is classic with coeliac, but they need to under the microscope. I also had erytamous gastritis where my stomach meets my small intestine so I've got tablets for that. Will get there eventually 😊

    • Jayney84
      Jayney84 jodie11659

      Posted

      Wow u did well to get through it without the sedation. At least it's over and done with now, hopefully onwards and upwards now when u finally have a confirmed diagnosis. hopefully when you go gluten free you will start seeing a major difference smile
    • jodie11659
      jodie11659 Jayney84

      Posted

      I went gluten free the minute I'd had endoscopy. Starting to feel a little better. Just getting used to it now.
    • jodie11659
      jodie11659

      Posted

      Biopsy results back, I'm coeliac , there is total atrophy damage rolleyes need to go back to hospital now.
  • antpring
    antpring jodie11659

    Posted

    Good to know you have answers hope it gets better for you now
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