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Really Scared

Posted , 8 users are following.

emma93780
emma93780

I'm getting to the point where I am really scared my dizziness is something serious or life threatening! All day everyday it's there constantly along with a hole list of other things going on, I have been to the doctors, hospital so many times and I still have no answers or I have been given answers that just don't fit my symptoms.... I'll list below the type of things that are going on and see if anyone has similar, I really feel like I am going through this alone and no-one understands really how rubbish I feel all the time, it's getting me down big time and I constantly feel like I am going to drop down or they will find something incurable as it's been going on so long :-(

Headaches

Pain in back of head

Lump in neck

Lump on jaw

Pressure in back of head

Dizziness

Stiff muscles in neck and shoulders

Numb feeling in face left side

Sweating

Tired all the time

Humming in left ear

Pain in the back of left side of head and having to apply pressure to it to relieve it

Pain in and around jaw

Tinnitus

Stabbing pain in left ear

Body twitching

Heart pulpertations

Sense that I'm going to fall over

This is what I've been feeling for the last 2 years, I've had head ct, bloods, seen ent, been to a&e, had physio, accupuncture, eye test, hearing test, echo on heart, 24hr heart monitor, therapy, dentist, meds galore.

Been told it's anxiety, migraines, vestibular neuritis, tmj, temporal neuralgia, tension headaches, stress and one doctor who said I don't know what's going on its a process of elimination.

I am stressed and anxious beyond belief with what's going on with my body I generally don't feel well, I'll have a day or 2 when I feel ok then bang it hits me and I'm dizzy beyond belief.

All I want to do it cry and for things to get better I'm a mum of 2 smalls children and this is ruling my life :-( x

0 likes, 47 replies

47 Replies

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  • laura59514
    laura59514 emma93780

    Posted

    Hi Emma,

    This sounds like it is really getting you down, I am sorry to hear this, although I understand how frustrating this is.

    I have had unexplained dizziness for over two years and very similar symptoms to yourself apart from the heart palpatations and am no longer my old self.

    I have come to believe this might be anxiety or stress, where although I feel far less stressed than I have before I think previous stress may have put strain on my body. I also realised I have little chill time. I do not think there is much besides medication for these migraine like symptoms. I am going to try some therapy when I habe the money!

    Keep fighting your case with the doctors and demand to see a neurologist!

    Hope you feel better soon

  • rita52071
    rita52071 emma93780

    Posted

    something is going on....not anxiety....the dizziness might be causing anxiety...not the other way around................can you get checked for verical heterophia???? Its an eye thing...where your eyes are not aligned
    • rocksolid
      rocksolid rita52071

      Posted

      I have this and made the same suggestion. Rita, do you also have this?
    • emma93780
      emma93780 rita52071

      Posted

      This is what I think Rita it's not the anxiety making me feel like this it's something else causing which is then causing the anxiety! I had a thorough eye test last week and they said all was fine, it took just over an hr they did all sorts even took pictures of the nerves in the back of the eye that can detect any swelling in the brain! My prescription has changed slightly however I doubt it's my glasses making me feel like this as I feel this way without them on! I just don't know what to do or where to turn next! I've woken again with a massive headache just like I went to bed with one it's getting me down so much x
    • rita52071
      rita52071 emma93780

      Posted

      I think I asked you this before but did you see a neurologist that specifically deals with headaches???? I am seeing one They are usually I believe at a headache center
    • rita52071
      rita52071 emma93780

      Posted

      You are right I do believe completely that because you are not feeling well thats why you are getting the anxiety.....dont think you have anxiety issues at all...........
    • emma93780
      emma93780 rita52071

      Posted

      I have been referred back to the nuerologist which could take months to get an appointment, I just don't know what's going on, if it's not a headache then I'm dizzy if I'm not dizzy then my neck is hurting its just getting me down big time, I wanted to go out today with my family to have a look about and I was so agitated and stressed because I just didn't feel right all on the left side of my head that I couldn't get very far I just wanted to be at home! These things just take so long I know the doctors aren't worried but I really am they need to try and spend a day in the life of my head I really don't know what else to do I think if I had clarification from an mri or ct that's it's not a tumor anywhere I might relax a bit but they are reluctant to rule it out after they've done their neuro tests!! X
    • lisa08672
      lisa08672 emma93780

      Posted

      Hi Emma how are you today?I had 4 days of constant headaches and went a week without them now pressure is coming back,I just want to lay down all the time but can't with the children around,it must be so hard for you trying to look after your little ones and cope with dizziness,keep strong and I feel having children gives me something to keep going for as they need me,its very hard.my MRI results came back normal as did balance and eye tests,bloods I was anaemic and vitamin d deficient,have you had and blood tests?lisa
  • Guest
    Guest emma93780

    Posted

    Hi Emma

    It sounds like you have had the main tests to rule out most nasties. It does sound like vestibular neuritis and this has probably cause anxiety which can cause heart pulpertaions and also makes your mind worsen any symptoms you already have. I started a discussion about a week before this about myself panicking whenever my dizzy spells come on. It's such a weird feeling and I start thinking that something's seriously wrong with me and then I started thinking I have irregular heart beat or a brain tumour etc etc. I am starting to realise I am being over anxious and trying to make myself keep calm. I think I was thinking of worse illnesses as you hear of them more and I couldnt quite believe that vestibular neuritis was something that brings on symptoms like this. It's a bit of a hidden illness! Anyway I hope you find something that can help relieve your symptoms, have you tried using a chiropractor? Might help relieve the neck and shoulders xx

    • emma93780
      emma93780 Guest

      Posted

      Thank you for your replies it keeps me going knowing I'm not alone through all this! It's so hard at the moment to convince myself that I am ok well not ok but you know what I mean that I'm not knocking on deaths door so to speak, I have had to go back to doctors again this morning as last night I was laying trying to relax when I went hot from head to toe and the dizziness came in a wave from my head to my feet and I felt like omg I'm going to pass out, I didn't but it really scared me, my heart was pounding big time and I started sweating I know this was just sheer panic because of what happened, I'm just struggling I guess with what different people are telling me, finding it hard to believe what they are saying because of how rough I feel, Lisa like you I will have a week or a few days of dizziness and headaches it will then go and then come back a week later with a vengeance, ic123 thank you for you message it really does mean a lot we are all going through this horrible time and trying to rule out the worst case possible I think for sure our minds play a massive part in what we think and feel that we torture ourselves daily convincing ourselves we are dying or going to die! I am seeing ent in the morning so really hoping for a thorough check on my symptoms. Hope you all have a good day please feel free to message me anytime xx
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