Really struggling and feeling very alone - what should I do? :(

Hey lovely!

I suffer from CFS and haven't heard of some of these symptoms apart from the brain fog. I haven't personally experienced the the symptoms you've mentioned above but with CFS every case is different. I think it may be worth mentioning it to the doctor and maybe asking for blood tests to rule some stuff out!

Hi. I really feel for you and can also relate to you. This time last year I was 3 stone lighter (lost weight quickly) and had lots of strange symptoms. I was convinced I had MS. I had tingling in arms and legs, weird vision (floaters etc), weakness in arms and legs, pain everywhere, hot sweats in the night, couldn't sleep well (I would wake up every couple of hours with my shoulders buzzing) pins and needles, brain fog, flu symptoms and major anxiety. No dr ever sent me for a brain MRI and said I definitely did not present as someone with MS. I had many tests for rheumatoid arthritis, thyroid problems, hormones, diabetes and regular full blood counts. I was also put on fluoxetine to which I had a bad reaction so got taken off them! Final diagnosis: post viral/CFS! I had been in hospital with pneumonia a month or so before it all started and I was told it had all come from that! Have you suffered any kind of illness bacterial or viral infection before these symptoms started? A year on and I'm so much better but not back to normal. My legs tingle alot although I do have back issues. I also still get shaky and anxious at times. I drove myself crazy thinking I had MS and was at the Drs or even A and E all the time! Please try not to drive yourself mad thinking of MS. I know how hard it is. Please let me know how you get on and although I can't diagnose you, I totally understand what your going through. Take care, big hugs, Faye xxx

Hi, I have had CFS/Fibro since I was around 16 only diagnosed about 6 yrs ago, I get terrible pins and needles and also facial paralysis, hand tremors and pinched nerves. I was told most of this was down to muscle weakness obviously due to the lack of exercise. I hope you get some answers

Yes, I have tingling sensations on my feet and calves and other nerve-related symotoms, like burning and heaviness in my legs. But you can't just pluck out one ME/CFS symptom and then think you might have the illness. People with this illness have a constellation of symptoms, which together, point to ME/CFS. These typicially include extreme fatigue (not just a normal tiredness that many people feel), unrefreshing sleep, and many other symptoms. Check the "solve me/cfs initiative" website. Also, I don't know what you mean when you say you "took a legal high." You smoked some pot? Left-sided symptoms don't say to me ME/CFS. You need to see a GP, someone who can look at your symptoms as a whole rather than piecemeal. But then again, you do mention having seen seven doctors, so I'm really not sure what's going on here. A GP can do bloodwork and refer you to a specialist. It does sound like you have something going on, though. It's hard to believe that all of these symptoms are stress related. 

Heather, so sorry to hear that you are suffering so much. Please have a good read about Vitamin B 12 deficiency. This sounds very relevant to you. Am going through this myself. Good luck.