Really upset 😢

Posted , 4 users are following.

Hi is there anybody who can give me some answers,

I've had decompression surgery April 2016 I was still getting all the symptoms after my surgery but my neck pain seemed more tighter n painful. Since the op I've also been having problems with my vision it goes really blurred at times plus having problems with making it to the toilet in time sometimes. I brought my appointment forward with my consultant because I was extremely worried n was struggling to cope. He did the MRI that shown everything was ok n told me I would still experience all these symptoms after my surgery!!!! When I asked how long for he guaranteed when I see him in 6 months time I'll be glad I had the operation. My language turned abit blue with him. I had the surgery to get rid of the pain and the symptoms. There just seem no let up at all. All they can do is up my pain relief ???? I'm so tired of being in pain it feels like it's never going to end. I can't even turn my head at times even though I'm still trying really hard with the exercises I was given n going out in a car is a massive no no that sends me through the roof. The bumps in the road. This is no kind of life for a 31 year old ??????

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  • Posted

    Hey Claireabella,

    I remember the pain of turning your head post op and it's horrible, especially travelling in a car where each bump is excruciating!

    However, it's very early days for you. At most it's only 7 weeks since decompression and it takes a lot longer than this to actually feel all of the benefits. The neck pain is probably the result of surgery, it's very invasive and takes ages to heal properly as with vision problems etc. Your consultant is just giving you a realistic time frame of 6 months, after that time you'll feel so different. Many people on here return to work and eventually lead normal lives. I had my decompression over 20 years ago. I lead an active life, raised two children, worked, drive a big car, walk the dogs, cook, clean, get drunk at parties (still lol, I'll never learn) etc. I do have some problems but I'm 61 now and have never regretted having the surgery (except in the early days when, like you, I thought my life was over as the pain was so bad). Try to be positive, I know that's hard but the worst is over now and you can take little steps forward. 

    Take the painkillers when you need them, sleep when you're tired and don't be afraid to tell everyone to clear off and leave you alone when things are bad.

    Keep posting, others will be along soon with more advice.

    Take care  xx

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  • Posted


    I also had same surgery in Jan 2016, I can agree with you on most points, it does take time and everyone is different.

    But maybe I can offer some reassurance that I have now returned to work full time, but still struggle with pain from nerve damage, (I also have Syringomyelea and had a grotesque sized syrinx in my spinal cord, which has almost all collapsed).

    Try to stay positive and I have learnt to accept I will have terrible days where I can't get out of bed but others when I feel like my old self.

    Rest on the bad days and enjoy the better days.

    I hope in 6 months you feel stronger and less pain.


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  • Posted

    Hi claireabella , I'm afraid your specialist is right .

    I had mine done April 10 ,four years ago . It takes a very long time to calm down because it is major surgery .

    I had Arnorld chari- malformation with Sprinx done . I suffered badly I still suffer today with swollen hands wrists , hearing problems back and headaches . It has all gone mental now as just trying to get over viral meningitis on the brain . I was in hospital with it now 10 weeks later still waiting for it calm down and disapear .

    You will be more successful with your gentle daily excersise taking each day as it comes taking any pain meds and just think of them as a way to help till you get to where you need to be ?? You will get there just don't try to run before you can walk or the recovery will take an eternity . Also some people heal quicker and some slower . I was off work a whole year which drive me mad . But it is your health . Just try and take it slow

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  • Posted

    Thanks Julia, tracy & sallyann, you've all given good advice. I think as hard and as frustrating as I find it I need to be patient & allow myself the time to heal. I feel better for your advice so thank you ????

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