Reasons behind refusing statins?

Posted , 17 users are following.

Hi All,

I am trying to do a bit of research behind why is it difficult to keep patients on a prescription of a statin drug.

I am aware of all the side-effects caused by the statins, but i would like to know the reasoning behind the choice to come off your prescribed statin or to try and change drug;

Is this because you feel your quality of life is lowered on a statin.

Is it lack of evidence behind the efficacy of a statin to lower cholesterol etc?

I am trying to find out if there is anything that could be done to convince patients to continue on their prescription of statins, or whether they would prefer to be offered an alternative medication.

Any views or comments would be greatly appreciated, thank you.

 

0 likes, 47 replies

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  • Posted

    Firstly, there is no real evidence that lowering cholesterols does prevent heart attacks/strokes, it may, but there are various schools of thought on the subject.

    Secondly, I think it is very irresponsible to try to get reasonably healthy people to take a potent drug like statins as a preventative medicine. It is just not the same as taking an aspirin on a daily basis.

    Thirdly, I think that the side effects of statins use are underreported, as the side effects build up gradually. I know, I have been there.

    I further think that there should be more media cover regarding the side effects of statins, so that more people who have been duped into thinking that statins are the elixior of life are made aware of them.

    I am not saying, that those with truly abnormal cholesterol levels  and existing heart conditions should not take them.

    • Posted

      spot on Usch.  Unfortunately what is also not made more public to the general population is that massively funded lobbying from pharmaceutical companies with vast amounts of money at stake influences bodies like NICE, who in turn set the standards by which doctors' prescribing habits are then in turn influenced.  The level at which LDL now warrants pharmaceutical intervention has been drastically reduced.  Thus many 'healthy' people now fall within a category where their cholesterol level previously thought to be within a healthy range, now has them with a lifelong statin usage, without much thought to whether they present with any contributory factors relating to heart disease etc.  High LDL alone has not been proven to elevate the risk of heart attacks in an individual with otherwise good vascular health.  I am vegetarian, am not overweight, do not have high blood sugar or blood pressure and exercise regularly.  I do however have familial (hereditary) abnormally high cholesterol.  I am most probably at risk of a stroke but I am in an even higher risk category of severe disability, even fatality, from taking toxic statins.  Catch 22 or what.
  • Posted

    In my case and in the case of many of the other seniors in my community . . . I demanded to be taken off simvistatin because of the crippling joint and tendon pain and the paralysis of my upper legs which made it really hard to move my legs and walk which is my form of exercise to ward off serious illnesses.  

    It became more and more insane for me to continue putting something in my mouth that was causing such a massive and excruciating reaction.

    Anyone with half a brain would not go near such a dangerous drug and I personally resent your desire to find ways of convincing people to take it.

    • Posted

      I'm not looking to convince anyone to stay on it. I'm just looking at what would make someone stay on the drug if for instance they were told it was helping lower their cardiovascular risk significantly. There is so much conflicting evidence on statins and I'm studying this at the moment so just looking for answers from all sides. 

      From what I can gauge, the Info from online pages and the NHS is greatly understating the effects statins can have, and those who suffer the effects appear to do so very badly, whereas a luck few appear to experience very few issues at all. 

    • Posted

      I do not believe for a moment that there is "so much conflicting evidence on statins" - there is simply the overwhelming mountain of evidence that people are being crippled by this drug and that the pharmaceuticals are desperately trying to protect their profits and not just keep people on a medication that they KNOW is harming them but actually trying to INCREASE the sales of this toxic substance.    

      I am highly suspicious of your motives and do not see you as a wholesome influence OR an honest inquirer.  

       

    • Posted

      Very true Diane, well said.  There definitely IS a mountain of evidence that we are being crippled as you say, by these drugs.  Simvastatin is the 'go to' first choice for GP's....why? Because it's cheap and they get funding grants for prescribing it.  It's toxic plain and simple. Yes it does reduce cholesterol but hey so does getting terminally ill from complications, death reduces cholesterol to nil!  I felt terrible guilt when I decided to stop taking it.  Guilt that I was refusing something prescribed to me by a qualified doctor who knew better than me, guilt that I was putting myself at risk, guilt that I was at risk of causing my loved ones the future stress of looking after a stroke victim.  I no longer feel guilt,I feel it my duty to 'spread the word' and stop innocent people becoming permanently injured by this dreadful drug.
    • Posted

      I really apologise if I've caused offence. I started off looking Into this by reading information on official pages, none of which explains the side effects anywhere near as bad as patient reports. 

      By saying conflicting evidence I only meant between patients and web pages so maybe saying evidence was the wrong word. 

      I'll leave it at that, I didn't mean to cause an argument or anger aty post. I guess it was just poorly worded.

    • Posted

      No anger caused on my part.

      But, please do look  into NICE's stance on about everything medical nowadays, including proposing to make teachers brush pupils teeths when at school.

      NICE isis turning into an autocrat; do we want this?

       

    • Posted

      no offence taken kay.  The problem is that those of us who have been lucky enough to become well informed on the subject are angry that we were effectively put at risk by those we trusted - our doctors.  the strength of feeling is high on this matter and becomes very emotive when we feel our wellbeing and even our lives have been in danger.  Any search on the web for statins side effects, other than of course NICE website, will show you the growing surge of anti-statin feelings.
    • Posted

      Let's not shoot the messengers - general GP's - we have to build up a powerbase to curtail the influence of N ICE.
    • Posted

      They are not going to brush the kids teeth, in this day and age that would be clasified as assault. From the bit on our local news they will be supervising them doing it. It looked as if the kids had all been given battery operated tooth brushes. Next will be parents protesting if they are given flouride tooth paste?
  • Posted

    I took statins from 1994 to 2007 and suffered from increasing muscular pain in my legs to the extent that I could not walk easily. My father had died of a heart condition in 1967 at age 44 and this and a high cholestorol reading had indicated that I should take statins although not all the GPs in my excellent local surgery were convinced at the time. I was mainly on Lipitor but tried many others and also Ezetimibe. The worst effect was from Simvastatin that gave me blinding headaches after 3 days. I tried this several times and the effect was always the same.  I also tried Lipoitor and Crestor - (rosuvastatin) the latter giving me the least problems - but my walking pain still got worse.  Being under 60 at the time and working I was not happy to be less mobile and started in 2006 to develop foot nerve pain and other problems. In 2008 I attended the local hospital and the consultant neurologist examined me and concluded in a written report  that I had myopathy / peripheral neuropathy possibly  connected with the use of statins.  In 2008 I decided that my foot and leg pains were worsening though I was not it seems diabetic and circulation was fine. I had never driven because of poor eyesight and so needed my legs and feet and used them a lot! I became concerned that it seemed that medical opinions on the effects of statins varied and that a consultant seemed to be warning me agsinst them. I stopped taking the statins in 2008 and the muscle pains reduced over a period of months to the extent that the neurologist wrote to my doctor to that effect on 4th September 2008.The peripherlal neuropathy pains  did not however decrease.  Gabapentin now provides some relief enabling me to sleep at night.   Ultimately I had 4 orthopaedic operations on my feet,which disclosed I also had substantial gout damage. I was concerned that this could have  come from kidney malfunction in removal of uric acid which I understand can also be a by-product of statins. I now have to take 600mg of Allopurinol a day to counter this and prevent gout.

    I have volunteered to go back onto statins in UK tests (well advertised)  but not been accepted by the hospital at Hastings UK- no reason given.    I understand that I may possibly have a genetic predisposition against statins but have not been offered a test by the NHS despite my statin damage. I am sure that some people are fine with statins but equallly sure that they do not suit me. I would love to know why.  Meanwhile my neuropathy contiues to slowly spread and has  now reached  my hands too.

    Everyone will have different experiences. That is why some people are able to persisit in taking statins.  For some of us they take all the joy and movement out of life - at which point the decision is easy - but only a patient, properly informed about the risks is in a position to 

    take that decision -  patients should get the [u]facts [/u]on which to make their decisions and be able to check that those facts are correct and not the results of slanted tests.  In any trial justice must be seen to be done and the facts properly tested by cross-examination independent of external influences

    athere is enough empirical evidence for me in my case file that my life has bee

     

  • Posted

    I was prescribed Simvastatin on being diagnosed CHD 16/12 ago.  After angioplasty this was changed to Atorvastatin 40mg.  Within a few weeks on (both)statins, I experienced the classic symptoms of muscle-ache (general), lethargy and mild depression.  The dose was reduced to 20mg, with little change in symptoms.  After several weeks without medication, blood tests showed no remarkable change in lipid levels.  My GP advised stopping taking it, as my lipid levels have never been of concern (low LDL and tris, high HDL, good ratio).

    I was 'offered' Rusvastatin as a 'safer' alternative, but I would have to pay for it!

    I am keen to restart statin therapy for its schleroma-reversing properties, but am reluctant to do so after experiencing side effects.

  • Posted

    Hi I stopped because I think the reason my cholesterol went up should be investigated not treat the symptoms it was assumed mine was fm I took a DNA test myself and it isn't my diet is very good I exersice so I know cholesterol goes up through menopause I think personal 5/6 is Ok better than the feeling that someone is trying to break my legs and the feeling of death the first specialist I saw said the reading was wrong in the first place the second one I saw said that it first dips then the second reading always goes up plus it's quality of life what's the point of taking drugs that cause other complications? Not for me
  • Posted

    My cholesterol level has remained and is always 3.4 and 3.6, as evident from my annual blood test that has been done by my GP.

    Yet I had 90% blockage in part of my LAD +  65-70 in right artery.

    Please refer to my health profile etc in this thread.

     

    I did not have anything against statin. The day I started statin ,  I started to have bad muscle cramps. Therefore is not about refusing to take medication.

    If you are a health professional then look at my history. The fact remains that I got a blockage. But nothing suggests that it was due to my cholesterol.

    As I have already asked, in this thread  how low a person’s  cholesterol should be? Our body do need it. Do you seriously believe that whoever is prescribing me statin are doing so, for any benefits to me. If you can give me a sensible reasoning I will be very thankful.

     I need a treatment other than statin. I do not believe the statin can play any beneficial role in my case.

    Most the people in this forum have elevated  cholesterol. Lowering cholesterol can be a benefit to them, but how about me??????

    My wife’s cholesterol is always above 5.6 at the present 6.2. She went to see the GP who said she do not need statin , despite her poor family history. He  did not bother to give an dietary advise, to my wife.

    I think every one here is on point system. You are not treated for the problem but A very general guideline. I do not know who issues this?

    • Posted

      I had stenosis in my aortic valve and atrophied heart arteries after they were hit by massive radiation during my bout with Hodgkins Disease in

      '80.  I have completely normal cholesterol and did during the time my operation happened 3 years ago, therefore had no need to reduce my cholesterol.  But was prescibed Simvastatin anyway, "just in case" after my heart operation.  It decimated my memory, the cholesterol readings went from completely normal to being down a complete third.  My memory became nonexistent in certain areas, at one point I could not fill out my deposit slip at the bank where I'd had that account for 25 years without looking up my account number, which I had filled in from memory 100 times by then.  It put holes in my brain's need for that essential fat, cholesterol, to operate correctly.  Being prescribed it "Just in case" is not my idea of fun, esp. from what I have been reading here.

      If you don't absolutely need it, please keep reading.  After a certain point you may very well not want to take on the risks of the dangerous side effects, even if you do need it!  I'm off of it and feel like I dodged a bullet.  Whew!

       

    • Posted

      you hit the nail right on the head Mrbob.  Regardless of my antipathy towards statins, I will accept they are a good option in certain cases.  However, 'certain cases' does not mean blanket over prescribing on the 'just in case' criteria.  It would be like prescribing addictive morphine to everyone with a "10% chance of getting pain over the next 10 years" - this obviously sounds like exaggeration but is exactly what is happening with statins - never mind that a proportion of patients will be severely and detrimentally affected by their use (however small this proportion is, its still important), deal them out like sweeties and never mind the impact.  It's not a new discovery that abnormally low cholesterol levels are connected to impaired brain function; many studies over many years have determined that those with dementia and alzheimers often present with cholesterol readings below 3.  Why the heck doctors wont listen to those of their patients that obviously have very real degenerative symptoms of muscle damage, liver damage and impaired cognitive function whilst on statins is beyond me.  Are all of them too young to remember the nightmare of Thalidomide? Prescribed to every female with pregnancy morning sickness but continued to be prescribed even after the first spate of birth defects?  It's hardly surprising we are all becoming cynical and aiming our thoughts at big pharma profits rather than actual good prescribing practice for our (the patient) benefit.

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