Received results ofor CT scan this week. Not sure if I should be concerned or not.

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My recent CT scan reads, "Both lungs are diffusely emphysematous. There is apical lung fibrosis. There is small volume mediastinal lymphadenopathy." Dr described Emphysema as "significant". I am a 54 year old female and diagnosed with emphysema at 38 years. Should I be worried?

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  • Posted

    Sorry i have no idea but i am sure someone will answer soon. But if you have had Emphysema since you was 38 i would not worry to much but i am no expert. i was told last year i have Emphysema changes.
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    • Posted

      Thank you for your reply John. I just wish the specialist was more specific. What does significant mean?

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    • Posted

      I thnk it means quite a lot but not really bad ? i have not seen lung specialist only nurse for lung function tests, but when you ask questions it's like trying to get blood out of a stone.

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    • Posted

      It is John. You either get medical terms which need to be translated or vague statements. I visited my GP and asked home if I needed to worry. He asked why I needed to know as it would not change anything and the treatment would remain the same.

      If you have your lung function results they will give you a good indication. Unfortunately, I didn't ask for mine.

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    • Posted

      yes i have mine 2 lot's from 2 tests over 6 months last one it had improved which is good. when i asked my doctor about it he said don't worry you will die of something else before that gets you ? since then he's sent me to hospital for prostate problems but hospital said it's fine ? now got to go with my tongue again next week. it's one thing after another drives me mad.

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    • Posted

      It sounds like any improvement is good news. Thank you for your advice.
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    • Posted

      Well not sure i give any advice to help you really, I know you said you never got your lung function results but you can ask for them anytime you want ? i keep records of everything i do and also record all my conversations at appointments with the nurse and doctors so i can listen to them after because i always forget what they said.
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    • Posted

      I have never thought of asking for my results before. Unfortunately, I would still need them to be translated. It's all just numbers to me. I know the Doctor was using the test results more than the scan results to aid his diagnosis. I know my FEV1 was 179 but it should be scored as a % and I don't know what that is.

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    • Posted

      I will call the surgery on Monday and request a print out of the results. Thank you for the link.
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    • Posted

      No worries glad i ould help, your doctor seems a bit usless you need to be firm and tell him he want to know your not a child. Or even better get online access to your records like i have.

      Are you in UK

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    • Posted

      Hi there. It is nice of you to ask.

      I did telephone the hospital and was told by the Secretary that she could not give me them but she would send them to my GP. I now have to wait a week or so.

      I think I have passed the worrying stage now and am thinking that if I was that bad, I would have been told by now.

      Thank you for your intetest though.

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    • Posted

      I have never had any lung function tests at hospital, all mine have been done at the doctors.
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