Recent consultant visit

Posted , 7 users are following.

Hi all,

I recently had my 3monthly consultant appointment, I told him how i continue to struggle working, increasing pressure in my nose/sinuses, daily dizziness, vertigo still present etc.

He pretty much brushed it all off, told me things like diuretics etc can be used but no solid proof they work etc, I told him i wanted to try anything for some relief.......he then basically shrugged his shoulders at me and said I will see you again in 6 months!!

To add insult to injury, he then stated in the letter he sent to my gp that I am coping well?! so so so angry!!!! any advice would be massively appreciated.

Sarah

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  • Posted

    Hi, I went through this Sunday. Since then I decided to help myself after going on line. I bought mineral oil. I'm putting it in my worse ear every 12 hours, for 5 minutes. After 5 days, Im going to have it flushed. Thinking back, my old dr use to flush my ears once a year. This new idiot of 18 years doesn't believe in that. N I think hes got me here today. Honestly the mineral oil has taken alot of pain away in 24 hours.

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  • Posted

    Hey Sarah,

    I'm sorry to hear about your poor experience with your consultant. Working with MD is a real challenge.

    There is "your Meniere’s" and "my Meniere’s" so not one thing will work for everyone. It takes time, trial and research to put together a custom regimen that is effective.

    Here is a link to what I'm using to manage my symptoms and I have been spin free from bilateral MD since June 2018 by the grace of God. Best Wishes ~ hang in there, today is not forever!

    https://patient.info/forums/discuss/meniere-s-disease-my-personal-daily-regimen-686166

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  • Posted

    Hi Sarah,

    I was suffering from this for almost 18 months with vertigo frequency of almost daily. But since I have started taking Bitahistine 16mg and Ginkgo Biloba 120 mg twice a day. I have not had vertigo attack in last 6 months.

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  • Posted

    Hi. I finished a round of 3000 mg per day for 30 day around November/December. It was not easy but I got through it and hope it worked. As you may remember, I was have a very difficult time recovering from the sac compression surgery that was done in May 2018. After several vestibular therapy sessions, I began to gain some confidence. I later reported that I was doing better and no vertigo. This week the worse attacks ever. The spinning was at such a high speed with nausea, etc it was practically unstoppable, I just feel short of calling an ambulance to be transported to the hospital for sedation. I am still not feeling well. My doctor has prescribed another round of valtrax in addition to my usual meds. I have to be very careful with my kidneys as well. I am seeing my neurologist soon to see what he thinks. I am so disappointed. I thought after all of this I just might get a break for just a little while.

    By the way, has anyone used transderm -scop patches to stop vertigo attack spinning? I used zofran and diazapam but they can be very difficult to use during major attacks.

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  • Posted

    Further update. I am going for another MRI and a Videonystagmography (VNG). It is a technology for testing inner ear and central motor functions, a process known as vestibular assessment. It involves the use of infrared goggles to trace eye movements during visual stimulation and positional changes. I don't know it will accomplish but have try what's available . No surgery at this point in my cards. I am taking diazapam as needed to control the episodes and zofran for nausea. Continuing the diuretic forever. Had to set aside second round of valtrex for now.

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