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recent diagnosis

Posted , 11 users are following.

eileen59440
eileen59440

just been diagnosed with ls - i just wonder if i could have had it for years without any symptoms like itching.  i read it has something to do with autoimmunity.  i also have chronic ulcerative colitis (cuc) diagnosed in 1994 which is also an autoimmune disease and wondered if there was a connection and if anyone on this forum also has a second autoimmune disease.  thanks.

0 likes, 17 replies

17 Replies

  • caroline16811
    caroline16811 eileen59440

    Posted

    Hi Eileen,

    I don't personally but I know lots of women with LS also have things like thyroid problems and arthritis so I don't think its a coincidence

  • patricia28253
    patricia28253 eileen59440

    Posted

    So sorry to hear of your recent diagnosis.This Forum has been able to alternatively keep me focused (don't panic) and also keep me informed of others' trials of alternative treatments ..so useful when you are despairing from this awful autoimmune disease. I really feel strongly that other similar diseases have this side effect .. I have an under active thyroid and acute arthritis. My friend also has, like you, ulcerated colitis and has recently been diagnosed with LS! Most GPs are now aware of LS I've found but really let one get on with your trial and error treatment regime. You will probably find your own too. Wishing you all the best

    • eileen59440
      eileen59440 patricia28253

      Posted

      patricia28253 - i initally went to my doctor (new to me because we just moved back here after being away since 1994) and at first he diagnosed yeast infection.  on 2nd visit he did a physical exam and got the ls diagnosis right away.  after he left the room so i could get dressed i pulled out my phone and googled it.  so glad i found this group.  
  • deb72675
    deb72675 eileen59440

    Posted

    Hi Eileen,

    I saw a new dermatologist recently who told me that their is a proven link between LS and underactive thyroid, and that I will have to have my thyroid levels checked annually. So I guess all is ladies should keep that in mind for the future.

    Debbie.

    • eileen59440
      eileen59440 deb72675

      Posted

      that's interesting - except for a time back in the 60's when i was on thyroxin and cytomel my thyroid tests are always low normal.

  • fran24104
    fran24104 eileen59440

    Posted

    I too have been recently diagnosed.  I also had an auto immune attack on a small muscle many years ago.   
  • sandra01720
    sandra01720 eileen59440

    Posted

    I have underactive thyroid (hashimotos) and LS. There seems to be a connection.
  • susan99000
    susan99000 eileen59440

    Posted

    eileen i too have an under active thyroid and severe arthritus and LS!! old age can be very cruel! i`m 61 and have had LS for about 4 years but currently things are settled,i use dermovate twice weekly and only use Sanex for showering.hope things work for you very soon x
    • eileen59440
      eileen59440 susan99000

      Posted

      thanks susan - well i'm considerably older than you - will turn 74 next month.  right now i'm just using triamincolone cream twice daily.  i think i had symptoms for many years that were attributed to other illnesses or simply left undiagnosed.  i was diagnosed with vaginal stenosis decades ago but it seems to me that's actually a symptom and not really a diagnosis.  any ideas on that?

  • susan99000
    susan99000 eileen59440

    Posted

    sorry Eileen ,not heard of that one,my LS ia at the stage where my minora and majora bits have fused together and the top of my vagina is growing downwards and is hiding part of my clitoris so i assume that will also disappear in time,i`ve decided that when i die i`m leaving my body to science and keep thinking they might send me back i`ll certailnly keep the students busy for a while sorting out all my various illnesses!! on a serious note,i have a very understanding husband who listens to my moans and can be very helpful. and brutally honest!
  • nannylin
    nannylin eileen59440

    Posted

    I have Crohn's disease and LS. Have had Crohns for many years, was first told it was IBS but after years of illness I was finally properly diagnosed. Definitely the two are linked by auto immune problems.

    • eileen59440
      eileen59440 nannylin

      Posted

      well i can relate - i was diagnosed with uc in 1994 but in all honesty i've had digestive problems as far back as i can remember..

    • nannylin
      nannylin eileen59440

      Posted

      Me too and I didn't realise LS was auto immune until I was referred to a dermatologist who specialises in vulval health. Touch wood it's fairly settled at the moment but my Crohns has flared so there's no respite.

    • eileen59440
      eileen59440 nannylin

      Posted

      nannylin, i used to belong to an online support group for chron's/colitis and there was a discussion one time about flare ups during allergy season.  don't know if any studies have been done but it makes sense to me.  btw when i first googled ls i saw a link to ongoing studies for newer treatments, if anyone is interested.

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