recent diagnosis
Posted , 11 users are following.
just been diagnosed with ls - i just wonder if i could have had it for years without any symptoms like itching. i read it has something to do with autoimmunity. i also have chronic ulcerative colitis (cuc) diagnosed in 1994 which is also an autoimmune disease and wondered if there was a connection and if anyone on this forum also has a second autoimmune disease. thanks.
0 likes, 17 replies
caroline16811 eileen59440
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Hi Eileen,
I don't personally but I know lots of women with LS also have things like thyroid problems and arthritis so I don't think its a coincidence
eileen59440 caroline16811
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odiee eileen59440
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patricia28253 eileen59440
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So sorry to hear of your recent diagnosis.This Forum has been able to alternatively keep me focused (don't panic) and also keep me informed of others' trials of alternative treatments ..so useful when you are despairing from this awful autoimmune disease. I really feel strongly that other similar diseases have this side effect .. I have an under active thyroid and acute arthritis. My friend also has, like you, ulcerated colitis and has recently been diagnosed with LS! Most GPs are now aware of LS I've found but really let one get on with your trial and error treatment regime. You will probably find your own too. Wishing you all the best
eileen59440 patricia28253
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deb72675 eileen59440
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I saw a new dermatologist recently who told me that their is a proven link between LS and underactive thyroid, and that I will have to have my thyroid levels checked annually. So I guess all is ladies should keep that in mind for the future.
Debbie.
eileen59440 deb72675
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that's interesting - except for a time back in the 60's when i was on thyroxin and cytomel my thyroid tests are always low normal.
fran24104 eileen59440
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sandra01720 eileen59440
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susan99000 eileen59440
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eileen59440 susan99000
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thanks susan - well i'm considerably older than you - will turn 74 next month. right now i'm just using triamincolone cream twice daily. i think i had symptoms for many years that were attributed to other illnesses or simply left undiagnosed. i was diagnosed with vaginal stenosis decades ago but it seems to me that's actually a symptom and not really a diagnosis. any ideas on that?
susan99000 eileen59440
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eileen59440 susan99000
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nannylin eileen59440
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I have Crohn's disease and LS. Have had Crohns for many years, was first told it was IBS but after years of illness I was finally properly diagnosed. Definitely the two are linked by auto immune problems.
eileen59440 nannylin
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well i can relate - i was diagnosed with uc in 1994 but in all honesty i've had digestive problems as far back as i can remember..
nannylin eileen59440
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Me too and I didn't realise LS was auto immune until I was referred to a dermatologist who specialises in vulval health. Touch wood it's fairly settled at the moment but my Crohns has flared so there's no respite.
eileen59440 nannylin
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nannylin, i used to belong to an online support group for chron's/colitis and there was a discussion one time about flare ups during allergy season. don't know if any studies have been done but it makes sense to me. btw when i first googled ls i saw a link to ongoing studies for newer treatments, if anyone is interested.