Recent ETD Diagnosis

Hi Ann, I'm sorry you are suffering with this. No, its not all grim! They are coming up with new things every day for ETD. I think you are doing the first things that every dr will tell u to, with the sprays, meds and CT scan. I also have not heard anything good about tubes. After suffering for over 3 yrs, i had the balloon dilation surgery and have been symptom free for 5 yrs. I did a lot of research even back then.  They have PubMed medical statistics on the procedure that you can read on the internet.  Most ENT's arent familiar with the procedure. You don't have to just live with it anymore, not with all the new technology. However, u are only a few weeks into this awful condition, there is a chance your body will fix itself, or the meds will start to work.  Try to stay positive! 

Hi there, yep, completely in the same boat as the rest of us on here.  Terrible condition and we are left to put up with it.  I tell everyone on here of my experience, that I've suffered ETD since the 1980's and to this day still suffer.  Sinus and congestion plus allergies that I'm sure are my culprits.  I've tried everything.  I think very soon I will be asking for a reducing method course of Prednisolone steriod tablets......three week on these and everything clears up.  Sense of smell and taste return too.  They get rid of all the inflammation and dry up mucus, that I'm sure sticks the eustachian tubes together.  Sadly, this problem caused me to contract bacterial meningitis in 1994, leaving me partially deaf in one ear with tinnitus and the sight gone in my left eye.  Once an earache occurs antibiotics would be recommended.  Today both my ears are blocked and drags me down so much.  Sinus headache over eyebrows pretty much 3 times a week.  Sorry can't write anything that will permantely help with this problem.  I see my ENT consultant twice yearly since my illness.

Good luck

Anne

I have a weird thing going on with etd. And i had nutty jaw pain that comes and goes.after a while with it. This time.Now im told tmd. I have have tmj twenty years mind you without this jaw pain stuff. Ten years back they gave me ear tube worked great only they fall out. They did it twice so i have the scarring cant keen doing it. Im in hell. At times clogged ears. Buzzing, had ear twitched inside at onset..i sat ent, and a maxialleary surgeon. Its been two solid weeks since it got bad enough to mess with my mind and my dreams oddly. If i comolain too much im told i seem nuts but im nit its so mind bending and makes me unhaooy. Im trying different stuff to help it. Awaitng to find physcial therapy for it and maybe accuouncture. I see a thematoid dr minday and am nervous if he will guve me some untreatavke diagnosis, whuch will annoy me. Google says its limited to minths and self corrects. Ooh i hope so. Its wioing me out in so many ways. I had the flu in december and nothing has been all good since. I cant use muslcke relaxants at the risk if my eyes. I also have an optic nerve pallor and mri nited decreased oxygen to that eye but i know why. So the oothamologist threw out we will watch for glacoma but felt it was frim a virus mono i had a long time back. But i need to be careful of meds i use. And it seems mist dint work anyway because if you clench and such that the root cause. So im getting very frustrated.  No one scanned me either they say insurance says no at the ent office. The maxillary surgeon said it is in the muscle. You can see my jaw has swuared which is common look for tmd pople. The surgeon said its common but i dont think all these noises are common but sporadic. The baloon thing might be a bad idea if this is from your clenching or bruxism if you have that. And it has risks to it as well. So if the scan didnt show fluids there its inflammation and they go to tmj or tmd at that point. Ent never really mention that oddly. One did by luck thats hiw i knew the first time tem years ago. And that all did recover until this year.i havent gotten a scan yet. Id want the scan of the jaw included.unsire if they can do both. And possible the vpcervial neck all works together. Insurance locks all this so its hard to acquire it but im hoping the rhematoid dr can help in this. Just not with some out there diagnosis. I have been nited to get a sleep apnea test which they dont cure either and that scares me to deal with stuff like that too many forum stories. 

Best  results i have seen for people is accuouncture so far. You tell them your issues and they know what to do. It does hurt a little frim what i am told. It just does but if it works i guess who cares. Im too weary of a chiropractor noone is snapping my bones.

Here's an update: Sudafed and flonaase for two weeks now.  Things have kind of improved.  I have normal hearing in one ear for some parts of the day.  I had a CT scan and it turned out normal.  The ENT prescribed Opti-Vent.  Anyone used it?  You blow up a ballon with your nose and its supposed to help unclog eustachian tubes.  My husband also ordered on line Eustachi which is also supposed to unclog tubes.  I was so afraid to use either one.  I was so afraid of popping pressure.  Ive used both but I'm not sure its working.  I think there is some movement in one ear and I'm spitting up some gunk (sorry) but, the ears clog up again especially in the evening.  Anyone have experience with any of these?  I'm simply doing the first part of the two things you can do with the opti- clear.  I haven't done the inflate method.