Recent flare up with LS

Posted , 16 users are following.

Last week had one of the worse flare ups of my LS.  Decided to goggle "Causes of flare up with LS", from which I found this site. Surprised to find so many afflicted with this disorder, started reading the posts and learned about foods to avoid (went to a birthday party before flare up and consumed a large amount of cake and icing and even brought some home!!).  Also normally eat dairy (cheese mainly).  Stopped eating any sugar and less cheese, stopped using soap down there and got some vaseline along with using my RX prescribed. Almost completely clear of symptoms in less than a week!!  None of the physicians I've seen have advised me of any of these remedies to try.  Thanks to everyone for their posts, so glad to have found this forum.

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  • Posted

    Good thinking - stop with the sweets.  Cheese used to be one of my triggers as well.  Only goat cheese for me.  

    ?Indeed, the doctor won't talk about foodstuffs.  Meanwhile here on this site we know that added sugar is aggravating LS for sure.  And leaving out soap, wair cotton underwear.  And the use of coconut oil for lubrication. Etc.  You probably have read the various topics and picked up on what works for many.  

    ?Wishing you well.  

  • Posted

    Coconut oil works for some but not for me.  I would put in on before bed and it made me itch like crazy.  Lavender essential oil works really well too and Emu oil.  Also Aquaphor, which is like Vaseline but a bit different I think?  I have to use it because I am splitting between my anus and vagina.  When I had my first child the doctor gave me an episiotomy and cut me all the way to my anus.  So unnecessary.  Now at 65 it is splitting.  I use Aquaphor on that and it helps if I do it daily.  I hope your flare ups are done for awhile and good luck!  
    • Posted

      That's where I have the most pain, between the vagina & anus and I also had an episiotomy with my first born.  Will try Aquaphor and is Emuaid cream about the same as Emu Oil?

    • Posted

      Coconut oil didn’t agree with me at all. My former gyno who unfortunately retired suggested aquaphor  I’m going to check the ingredients. Someone wrote that Vaseline is not good. So I’m not going to use it again. 

      So difficult to find the right thing to apply. 

      Which emu oil is the best to use. I also had an episiotomy for my first child. I’m. 70 so that was many moons ago. Do u think after all these years it can cause splitting?  

    • Posted

      My pain is in the same place as yours. Burning too. Not pleasant! 
    • Posted

      Aquaphor and Hydromol OINTMENT not cream will be fine there is nothings in them that will irritate you and they act better as a barrier too. I souls see how you get on with one of those before a fortune on the more 'exotic' products is my advice. good luck and let us know how you get on Maryella xx

    • Posted

      I’m doubtful to order some of the creams that aren’t familiar to me. Besides wasting money they can irritate 

       Borax seems to be quite popular. My dr said NO to that 

    • Posted

      Not being disrespectful to Drs but they know next to nothing about LS, I'd sooner take a recommendation from ladies on here who are dealing with the condition than a Dr who took months or in lots of cases years and years treating us for THRUSH !!!! 😠 my advice is to not try too many things, stick to your steroid and a barrier/moisturiser until everything's had been good for a few months then if you want introduce sometimes you'd like to experiment with. That way if you react, you know it souls probably be the new product.xx

    • Posted

      I agree with you. Especially My Gyno. She’s very young and doesn’t know very much about LS. I’ve tried to see a specialist but no luck. Their practice is closed to new patients. I’m very sensitive to many creams so I need to be careful.  Although when u have pain you’re willing to try anything 
    • Posted

      I agree with you! and yet it never ceases to amaze me how many women blindly follow their doctor's suggestions, often sending them down the wrong path for months and sometimes years.

      But, what really gets my goat is when women are sent off for a biopsy when it is clearly and plainly Lichen Sclerosus. It is not difficult to make a visual diagnosis. Also, women don't realize that by having the biopsy they are often making matters far worse and it is called the Koebner phenomenon.

    • Posted

      Do you know Arlee why your doctor said no to borax?

       

    • Posted

      Hanny I never had biopsy even though I have no white patches. Dr said architecture changing. She said biopsy would only irritate me more. I have enough burning as it is.  The strange thing is. I was there last week after having culture for yeast. It was positive. When I was leaving the dr said she’s not firmly convinced I have LS. Omg. And I used clob for weeks?  I’m going back this week and I’ll ask her about that comment. I was taken aback when she said it. Just ridiculous. 

      Maybe she didn’t know what borax is. Some people don’t know. I associate it with laundry! 

    • Posted

      Borax was used in the medical world a long time ago.  Yes, laundry department here.  I use it in my laundry detergent as well.  

      ​Perhaps a biopsy might be useful to make sure you have the correct diagnoses and consequently the right treatment.  

    • Posted

      If you Google it arlee you will find a better explanation than I can give you.
    • Posted

      Borax works great. Most doctors are very cavalier about this condition. At least this is my experience so far and they really don't know that much beyond Clob in my opinion. I am pretty mad about how I have been treated. I used to think doctors were like a God but that changed in my 20's when they botched up my birthing experience. My son had to have his head x-rayed because the doctor had me push for 3 hours (natural birth) and then a nurse walked in and told me I was too upright in the bed. She laid me backed and my son crowned and started coming out. The doctor came finally but was flirting with another nurse and made me breath through the next 20 minutes so he could talk to the nurse. The other nurse was so upset and later told me so. I finally said to him, get over here I cannot hold this baby back any longer. That is when he cut me to my rectum. Never yell at a doc with a knife. I know I am splitting for this reason. After the birth sex was so painful. I asked my doc and he just said I needed to be streched out. He put his big hand in me and started pulling around. After that I moved from LA up to San Francisco. My new Gyn/Ob told me I had a deep rip in me 2 yrs later that had not been stitched up correctly. Docs lost their halo on that one. I became a Doula for helping other women. Scar tissue does not stretch and with LS I know this is why I am splitting. In 2 wks I go to a Vulvar specialist. I will let all of you know how that goes. I think we all should be going to them or some kind of specialist that knows a lot about this condition. Gyn/Obs just aren't informed enough about this.They tell me good luck and it could be worse. Nothing about what you wonderful ladies tell me! These suggestions on this site have helped me so much. I have tried to tell my last Gyn/Ob about them and she basically ignored it. I feel so badly for women that have this but don't know about these sites. Thank you all!

    • Posted

      Hi Texin, so sorry to hear about your experience giving birth! All best Maggie x

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