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Recent flare-ups

Posted , 4 users are following.

nia45100
nia45100

I love this forum, everyone is so supportive. I am 37, and was diagnosed with LS six years ago. I cant use steroids because I also have herpes. The bad kind. I tried using a hormone creme and that did precisely nothing so I switched to emu oil. 100% pure emu oil is very very soothing.

So all was well for a long time,, I use destisin zinc cream for both the dreaded herpes and for the small cracks and splits my LS visits upon me. Then last year I developed rosacea on my face, I think I definitely have some kind of auto immune thing happening. A naturopath advised me to cut out gluten, and because of the herpes I already have a pretty crazy (low arginine) diet. also i dont eat any sugar, only a bit of honey.

But all of a sudden my vulva and anus are full of little splits and fissures and I can see white scarring and sex is impossible (not an issue until now) also red angry inflamed patches on the internal walls of my labia minor. What is going on?

also, has anyone had any success with Perrins complete cream??

and how much MSM do you use? already have some in the house for hubby.

yours in itchiness

nia

0 likes, 4 replies

4 Replies

  • sarah24152
    sarah24152 nia45100

    Posted

    Hi,

    Like you I've found great comfort in this forum and had lots of useful tips and support.

    Unfortunately I'm a newbie to this and can't really offer any advice but I can offer some support so from one sufferer to another I really hope things improve it sounds so sore & painful and we all know how lonely the bad times can feel.

    I'm sure someone better qualified will have some useful tips but medication aside I've started listening to music a lot more before I go to sleep - some relaxation stuff otherwise just gentle music I like - its helping the stress levels.

    Good Luck !

    • nia45100
      nia45100 sarah24152

      Posted

      Thanks Sarah, my husband and naturopath think I should be meditating, tried it last night using an app called Insight Timer. it was great, felt good after, but the house was clean, dinner cooked and the family were out... not sure how I will fit it in on regular days when the house is a tip, everyone is starving and at home!

      good luck to you too

      n

  • jeri24294
    jeri24294 nia45100

    Posted

    Hi Nia,

    I use the Perrin creme complete most of the time, and maybe once a week the Clob (steroid). The creme seems to keep me in check. Good luck.

    • nia45100
      nia45100 jeri24294

      Posted

      Hi Jeri,

      thanks for the info. I just found an Australian stockist so wont have to wait six weeks for it to arrive from the US. At this point, I'll try anything!

      ta,

      n

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