Recent surgery...

Yes sitting down is very painful.. I have to either sit on the side on my bum cheek or lie down... It feels as if I'm wearing tight jeans that are digging in my vagina. Constant ache at the bottom of my vagina and stings 24/7.

Having a wee stings and I just apply Dermovate after each wee.

Day 1 over... onto the next xx

Sounds awful. You poor thing. You sound very brave. Good that you are counting down the days and each day it will get a little better. Do you have a rubber ring to sit on?

Thank you for the support x

I don't have a rubber ring 😦 Don't know any local shops that would sell one ..

Oramorph and Dermovate seem to be taking the sting away just can't get rid of the constant ache at the bottom of my vagina when I stand/sit/lay down x

Ahh yes the bus i can relate to!

Did you find the surgery helped? and what cream was you applying after surgery? My surgeon said plaster in Dermovate.

Can't wait to feel improvement its so sore at the mo x

it was with every painful/sore moment! Before the op I could not have sex with my husband, vaginal opening had really closed! surgeon not only sorted that issue but smoothed out the scaring I had from the stitches I received over 28 years ago from giving birth to my son! I was very lucky that my private health insurance paid for the op as I don't think the nhs surgeon would have done as much! stick with it! x

Exactly the same as me!

Haven't had sex for 18 months.. doc says put "anything" up there to keep it open once the soreness has gone down.

I also asked her to have a look inside as I thought (still do) that there's an issue inside too (because when my partner tried to get in i felt there was a 'wall' and to get through it felt like his penis had to pop thru something if that makes sense??).. She said all was fine and she thinks its because I was already expecting pain/soreness during sex my vagina was having spasms and tightening up... sorry for the details just wondering if you had this? x

Yes I did and I know exactly what you mean by the popping issue! it will get better! my surgeon prescribed dilators, various sizes, to use a couple of weeks after surgery! I have also been prescribed vagifem to take twice weekly for maintenance but I use I a week! x

really! Was the popping feeling inside or outside? Mine was inside... My surgeon hasn't prescribed any dilators.. What does the vagifem do? X

Also, I am feeling a constant ache at the bottom of my vagina just wondering did you get that day 2 after surgery? X

it took nearly 3 weeks for me to be able to sit comfortably and it stand for a good week when I went for a wee! the vagifem is a hormone (like a tablet which I shoot up my hoofer (Sorry for terminology) )! it keeps the vagina moist and it has helped! it's early days for you and you will be sore! I found it a painful experience but it will get better, plenty of salt baths.....it will be worth it x

Thunder_Thighs, may i ask where you live? Sounds like your doc was good and was able to also smooth out scar tissue? Im wondering now since i have fusing at the entire top area (from clitorus up) if that can be unfused and maybe there is actually folded skin underneath? So confused about the anatomy situation down there!

Yes I'm struggling to sit comfortably and even when I'm standing I can just feel the constant ache at the bottom of my vagina.

Doc said not to soak in bath for 2 weeks? I've just been rinsing myself with the shower head just warm water.

Did you find you had to strain to get your wee out because mine are struggling? X

Yes, I live in the UK in Devon but I did go private! my health insurance paid for it as the wait for NHS was too long!

mine didn't say not to and as I had stitches I felt that a shallow salt bath would be best for healing! I must say that I didn't have any problem weeing, just stinging for a week! if it continues I suggest you go and either see your gp or speak to them! the other thing he has advised and so has the nurse at the vulva clinic, is to put some ointment around there after urinating! I use coconut oil! x

I think I'm going to try and sit in the bath for 5 and see if that helps.

I think by the hole is still swollen and that may be why i'm struggling to wee..

I'm rinsing with a flannel & applying Dermovate after every wee because its the only thing that seems to relieve the sting (nothing is taking the sting away completely).

The ache is driving me mad x

Molly, have you not been using hormone cream?

No Beverly, just Dermovate? X

Sorry, but I can't keep track of people. You are not menopausal then? Have you had your estrogen levels checked?

My gyn said my LS was caused by low estrogen (I also have AV), but as younger people get it that just doesn't make sense, other than demonstrating how little they know about what causes LS.

I am only 21 so i'm guessing docs haven't considered my estrogen levels... yeah your right there they have no idea about it x

Maybe there are other diseases that people of different ages (and genders) get FOR DIFFERENT yet UNKNOWN REASONS , but as I'm not in the medical field I don't know of any. If there are, I'd be curious to know what they are & if there are similarities to LS. In the meantime I am going to find out all I can about the Platelet Rich Plasma treatment. I think we all should look for doctors or clinicians in our areas and gather as much info as possible to share. I'm a lot older than you are, but I still don't want to have to apply steroids constantly for the rest of my life while watching the area slowly erode as seems often to be the case.

Hope you're feeling more comfortable.