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Hi, not sure if I’m doing this correct so apologises in advance.
I am a 21 year old female recently diagnosed with LS. I had it when I was about 10/11 on areas all over my skin. By the age of 15 all of the LS had cleared and I was left with many scars. I got diagnosed last week with LS of the Vulva after seeing a gyna and doc said I have had it down there for years.
I had the itching and soreness for a while I just thought it was thrush and was too embarrassed to see anyone about it. However it started to get worse and I was struggling to finish my wee’s properly and I couldn’t stop itching so I went to the docs.
Doc confirmed LS 4 months ago and referred me to gyna. Gyna confirmed LS last week and prescribed me Dermovate for 3 months and then go back and see her. She explained she was worried as the stage my condition is at is the equivalent of a 75 year old lady and I’m only 21. She said it’s very aggressive and active and I almost have complete fusing. My 9 year relationship broke down just before Christmas and we hadn’t had sex for 12 months prior to this. It wasn’t the main reason of the break up but it did contribute.
Feel like I’m stuck and I’ve just been left in the lurch. Gyna said she wants to do surgery to try and save what’s left but she said most of it is too late to save and has already gone. She said she was unsure at this stage whether I’d be able to have sex again but definitely not in the foreseeable future. She said I will never be able to give birth to a baby naturally.
Don’t really know much about the condition as there’s not much on the internet about it. I just keep seeing that there’s no cure and it’s really depressing me. I’m itching all the time and I’m struggling to cope with it.
I’m only 21 and I can’t understand why this is happening to me 😦. Just asking for some support from fellow LS sufferers? X
Thanks for reading if you got this far.
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