Recently diagnosed - 31 years old please help

Hi Cheryl, I'm newly diagnosed 2 weeks ago from punch biopsy and had symptoms for about a year and a half. During that time lost with four different doctors guessing i got the right answer which i suspected from reading on the internet. I am on Clobetasol twice a day for two weeks then slowly taper down. After a week of medication, I can finally begin to see some improvement. My own take on this is that you have to educate yourself with every possible source, then find what works for you knowing it is for lifetime. We must be constantly vigilant now so we catch anything new and use the steroid as a maintenance tool once the inflammation has gone away. we are lucky in that we live in times of the internet where reasearch is easier online. I have also joined a lichen sclerosus closed group on Facebook that i have found very helpful. I purchased two books from Amazon and that information has been very helpful. my circumstances are somewhat different as i am 76 and my doctors thought i was just dried out from age, that is true of course, but now need more moisturizers than ever plus this steroid. I am thankful for the good medications of today. It is frightening, but it will all be okay, just take a deep breath and do your research which will enlighten you as it is doing for me. now i must share my diagnosis with my two daughters and granddaughters. There is a genetic component and I'm from a family full of eczema, psoriasis, etc. I want them to be warned because they could get it also. If they do, they need early treatment so they will recover. There are women who have had this for many years, in fact decades who had no treatment or no proper treatment, so I consider us lucky. We now have our medications and will get better. I wish you the very best in your journey.

Dermovat /Clobetasol/ is the best medication by far for this condition . I used it every other day at first and 2 times a week after that for 4 months and now once every 10 days for the last few years . Things will get much better now that you started a treatment. Do you mean that you have Vitiligo ? / do not know Virtiligo is / I do have Vitiligo which is also autoimmune condition and often come hand in hand with LC.

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Hey There,

I am 31 also. I was diagnosed officially 2 years ago, but had symptoms of the disease back when I was a teenager.

I had it quite agressively, but even still I found a treatment that worked for me and everything is totally fine now. I barely think about it anymore. I have had issues with BV which I wrongly thought was an LS flair for a few months. The BV problems are only because of my clobetasol and methotrexate (which I take to manage my LS) have been very frustrating at times - but I now have those mostly sorted out too.

It will be a learning curve for you in the beginning- while you figure out what works for you- but it will be fine as long as you are consistent with treatment. make sure you soak before applying clobetasol and rub it into each spot for 90 seconds- this is crucial!

Ps: Your sex life isn't over. You may have issues pop up from time to time that will require you to take a break for a few days. But you are lucky to have been diagnosed early. You can prevent any progression by adhering to treatment. I read so many horror stories when I was diagnosed about women that haven't had sex in years because of this disease- my specialist assured me that this wouldnt happen as we caught it so early on. He said that ls is a highly treatable condition and when treated properly it rarely progresses. I am still able to have great sex as often as I want 😃