Recently diagnosed
Posted , 5 users are following.
i have recently attended lung clinic and the consultant requested a lung scan and told me he thought I had chronic lung damage When I returned to clinic and saw a different consultant she informed me that I have slight scarring which she thinks has been caused by infection( I have had 7 in one year ,of which 3 have been since October.... Strep pneumonius and haemopholus influenza ) and evidence of mild bronchiectasis. Does this mean that I have lung damage or not, I'm a bit confused and should have asked the question in clinic. I also have a small nodule which they will scan at intervals of three months for 2 years. I have been exhausted since September and get run down very easily if I do too much I pay for it a few days later. I have been referred to Physio, advised to take antibiotics when infection starts again and to be revised in 3 months. I have gastric problems and acid reflux which she thinks I am aspirating and causing the infections. I have now been off work( I work full time) for 4 months. Does any of this sound familiar to anyone and if so I would welcome any advice.
1 like, 5 replies
joy23863 Jelly_Bean57
Posted
sdawoolsey Jelly_Bean57
Posted
I strongly recommend you visit a respiratory expert, not just a GP. My respiratory physician manages my bronchiectasis & it makes such a difference to your life.
4 months off work? It seems to be you need a better doctor or at least, a respiratory physician. So take control.
ruthie2673 Jelly_Bean57
Posted
Luckily yours is only mild. Help from the physiotherapist to learn how to cough up the mucous is important and the standby antibiotics, and regular follow up by your consultant all of which you have.
Sadly GPs do not appear to be well-informed about this disease, hence most of us have been suffering for some time before we get the correct diagnosis, and even once that has been made, in my case my GP was still fairly useless, handing out an inappropriate antibiotic and making ignorant comments. Therefore you need to remain under the care of your specialist.
mo_69 ruthie2673
Posted
joy23863 Jelly_Bean57
Posted