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Hi, I've just recently been diagnosed with CFS. I was advised at my rheumatology appointment to keep active - which to be fair I try to stay reasonably active with gardening and to start exercising. So I increased my dog walking and went on my exercise bike over a long weekend as I'd booked some time off work. Oh my god, I was fine for two days and then felt absolutely horrendous for a week. Had to drag myself in to work. Still feel worse than usual and have really struggled to do much of anything. Am now frightened to up my exercise in case I feel worse again, can anyone advise please. Had my symptoms for five years and most of the time just muddle through managing the peaks and troughs but this has been pretty bad.
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Best of luck
For certain, if you have CFS, doing more exercise like you describe is wrong. It's easy to do too much if you feel OK and then pay for it a day or two later, for a week or two.
On this web page there are links to the ME association and others. Spend some time on them.
Whatever you do, if it is CFS, be careful about what you do. Loads of us have found, that unlike other maladies when a good workout can make you feel better, with CFS its the worst you can do.
On the other hand, being afraid to the extent of becoming inactivie is also bad news. Find what you can do without 'boom and bust' or 'crash', do that, listen to your body.
People in the medical profession still dont understand ME/CFS i have had it for 7 years and now i have learnt that if i do something i will pay the next few days so you have to weigh it up, if you want to exercise do it gently walking the dog is good if not to far i am lucky as my dog is ball mad so i sit on the chair and wear him out that way perfect.
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