Recently diagnosed as a carrier but have an elevated farretin level of 286
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I was referred to a hematologist because I'm a haemocromatosois carrier with a ferritin level of 286. Saw the Dr. Today and he said all my liver enzymes are normal my saturation levels are normal amd although my ferritin level is 286 he wants to wait and see me back in 6 months and then go from there . Is this normal? Does this sound OK or should I seek another opinion?
1 like, 16 replies
jmcg2014 michelle3737
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hemopatient123 michelle3737
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michelle3737 hemopatient123
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hemopatient123 michelle3737
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jmcg2014 michelle3737
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Charlieangel jmcg2014
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How I wish that were true my son is a carrier as am I we both have multiple joint pain ,ibs racing hearts and much more my son starting blood letting he has massive iron overload I'm currently waiting my iron level results ,have a feeling am next for blood let,ibs think a big problem is that when diagnosed as a carrier there are new genes that are not tested for,much more research is needed it's so overlooked hey .
Mrs._Z michelle3737
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I have hemochromatosis and my children are carriers. When asked the hematologist that I see about this she remarked that carriers will normally have elevated levels and should not be a concern. It's probably a good idea to continue to be checked to be on the safe side.
michelle3737 Mrs._Z
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sheryl37154 michelle3737
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michelle3737 sheryl37154
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sheryl37154 michelle3737
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terrihigashi michelle3737
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terrihigashi
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jmcg2014 terrihigashi
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sheryl37154 terrihigashi
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