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RECENTLY DIAGNOSED - BIT OF A SHOCK

Posted , 4 users are following.

DIZZY
DIZZY

I was recently diagnosed with Polymyalgia Rheumatica which was a bit of shock having been fit and active all my life. It came on out of nowhere, one morning I could not get out of bed. The pain was incredible when I tried to move. My first thoughts were that it was flu and I tried painkillers, Paracetamol then Ibruprofen. Never taken anything other than Aspirin before. After a couple of weeks with no sleep because the pain was so intense I saw the doctor and was prescribed Diclofenac Sodium, this never worked and another doctor sent me for a blood test which showed up PMR. She put me on Prednisolone steroids which took away the pain except for in the wrists where it seemed to concentrate. I have managed to ditch the Ibruprofen now. The doctor also prescribed two other pills, one for protection on bleeding from the stomach (a side effect) Omeprazole capsules. When I started on these I had some severe stomach pains so stopped for a few days. I can now tolerate these. The other pills are Adcal-D3 lemon for the bones. Seems like no one is sure what triggers PMR, my doctor said it could have been a virus I never knew I had. Wonder if any fellow sufferers have any ideas on this. Also this seems to be a bit of a Cinderella of a disease, can't find any specific research on it. Would be interested to hear if anyone has more knowledge. Or any groups looking for some helpful information. Would be grateful for any suggestion of how to cope with coming off the steroids. DIZZY.

0 likes, 6 replies

6 Replies

  • mrs_k
    mrs_k

    Posted

    Dizzy

    You posted the same post - under the heading PRM & Exercise.

    People have responded to that post under that heading.

    Take a Look.

    Craft's disease as well!!!!!

  • Nefret
    Nefret

    Posted

    Hi Dizzy, I responded to your earlier posting. I'm also in Surrey, if you'd like contact, email me direct. Hang in there!

    Nefret

  • DIZZY
    DIZZY

    Posted

    [quote:0988b3d7b6=\"Nefret\"]Hi Dizzy, I responded to your earlier posting. I'm also in Surrey, if you'd like contact, email me direct. Hang in there!

    Nefret[/quote:0988b3d7b6] sORRY i CANNOT SEEM TO FIND THE WAY TO REPLY TO MESSAGES, AM TRYING THIS OUT, HELP!\"! DIZZY.

  • Guest
    Guest

    Posted

    Dizzy

    Your message came through fine so whatever you did must have been right - try again....practice makes perfect!

    As you live in Surrey, Nefret replied to your earlier message asking whereabouts in Surrey you are. I am also in the Surrey area, in Ashford, near Sunbury and Staines.

    Hope you are improving - do let us know.

    MrsO

  • Nefret
    Nefret

    Posted

    Yes, sorry you're having problems, Dizzy. I live in Leatherhead, but I will be in beautiful Devon for the next week (which is going to be rather wet, I'm informed) so no rush, take your time and practice with Mrs O! This short break is rather an experiment as this time last year we went to the same place and I came back with a major PMR flare-up, which somehow coincided with a severe chest infection, chronic asthma problems (as a result of the infection) plus other odds and ends. Am I mad, going back there again? - probably! I will be back on the computer end of next week whatever happens.
  • mrs_k
    mrs_k

    Posted

    Dizzie and Mrs O (no not Nefret - I have your email address already)

    I am trying to put you in touch with each other and perhaps it will lead to a meet-up.

    email me on this site or on pmrfighters@yahoo.co.uk

    mrs K

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