Recently diagnosed but no follow up...

Hi Nancy,

Thanks so much, though I can’t seem to open the link! 

Sally

OH! that's odd... oh, so just put the title into the forum OH! or click on my name and it will come up with the the two articles I've posted... just scroll down to them. castor oil really helps the anus.  I"ve never used the steroid. Here in the U.S. it is not covered by insurance and $200. that is way out of my budget. on top of that, my heart specialist -turned integrative doctor said it wasn't the best for people anyway, in the long run. HE is the one who alerted me to the fact of Vitamin D3 being a worldwide deficiency problem and that it was necessary to heal. I know a lot of people here have managed without knowing that intel... so I guess steroids work too to some extent BUT then they are still using them 10 years or whatever later... which means to me that they are definitely not a cure. Vitamin D3 is chap by comparison and if i can get out of this life without adding the diagnosis of cancer or other horrible autoimmune disease, I'll call that good.   

Hi Nancy, I just tried that link as well and it says there was an error.  Hmmm.  Again, thank you for all the research you have done.  I may be seeing a bit of an improvement having cut way down on food with flour, specifically bread, which I love, and upping my D3 to 10,000 units a day.  Wondering if I can take more.

But it is a daily obsession with LS.  A real challenge and try not to look down there everyday.

Oh gosh Susan and Sally,

I was able to see both of my posts on my research. well I've been wanting ot condense and update and repost anyway, so give me a day or two and I'll make a new version that will have the titles to the references in it so that you all can go googling yourselves armed with info.   

OH! by the way, I just discovered that to take lots of Vitamin D we REALLY have to up our magnesium, one of the 3 cofactors for D. I got constipation for the fist time i my life - argh. Finally realized why and have really upped the magnesium... maybe prunes too. 

Hi,just to say that itching round the anus etc I'm finding oregano oil in coconut oil helpful.

Maggie x

Hi. I take 10,000 ui vitamin D once a week. It’s only by prescription for osteoporosis.  Wouldn’t taking that amount everyday be overkill? 

Everyone has different things they use to help LS. My doctor never mentioned olive oil coconut oil and when I said borax - she thought I was crazy! 

Hi Arlee, 

The Vitamin D research is coming in DAILY in the last 10 years I've only just discovered, and it's  positively astounding intel in recent years, RE: cancer and other autoimmune situations!  The things is that it's not overkill if it is saving your life,  extending your life, improving your life... AND being taken in balance with it's cofactors of K2, Omega-3, Magnesium and Boron.  I"m really close to posting my updated research this evening. so you can read up what I've found. 

Spell check Rectum

Hi Caroline,

I’ve not had anything- just a letter to the GP from Gynae outpatients confirming diagnosis- picked up prescription from chemist so that was pretty much it! 

I’m not sure they can do too much more but it would be good to know someone’s keeping an eye on any changes!

OH my GOSH!     Sally, I had no idea that there was such a possible downside to having universal health care. no instructions?   ell we don't do much better here which is why I was so grateful to find an integrative doctor who took medicare/medicaid insurance.  Will get a new protocol and premise list updated soon

Honestly, it's just not good enough is it ! Makes me so angry 😠 The general instruction is to use every day for a month, every other day for a month then twice a week as maintenance. The important thing is to rub it in for 90 seconds. Also to use a barrier to moisturiser and protect the skin. I use HYDROMOL OINTMENT (not cream) you can also use that on your anus. Whatever barrier you use you can put it on over the steroid after 30 mins.

After Nancy's fantastic info I have started on vitamin D , was already using magnesium oil and have cut out sugar. I am wheat/ gluten and lactose intolerant. I also make a point of looking at the skin with a mirror once a week to make sure everything looks ok condition wise, with no changes.

Hope this helps. Thank God for this forum or most of us would be lost, uniformed and feeling desperate and alone. Hope this helps Sally. X

Caroline thank you so much! It had how often to use but not exactly how and to use a barrier! I’ll order some now, and some vitamin D3!

Weirdly enough I can have bread or milk either! 

Thanks again,

Sally