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I have just been diagonosed with B12 deficincy my B12 Level was 52 when I was hospitalised after losing the abilty to walk.
I am BEYOND tired. My legs are numb and tingling my hands and arms are the same. I cant stand or walk due to balance issues. I have undergone testing and the sensory nevres in my arms and legs are not working. I have lost 19kg in 4 months, My hair is falling out in clumps, my vision is blurry, I cant think, I forget stuff all the time, Ive been getting heart palpatations, My muscles are wasting away. I cant even feel if I need to go to the toilet.
Nothing is working and infact its gettig worse since leaving the hospital I have lost the sense of tast and my face is now also numb.
They gave me three doses in hospital of 800mcg B12 injections. Then they sent me home. Ive had three shots since but its not working. Now they reckon I dont need one for another 3 months. My doctor has said Im the first paitent he has seen with such a bad deficiency. Im not sure he is doing the right thing. They decided I wouldnt need one for three months BEFORE getting another blood test.
Does anyone know the BEST treatment plan. The longer my levels are stupidly low the the more chance this nerve damage will be permanent.
I feel I may have to research this and educate my GP.
Any info, reading videos you could suggest would be great.
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