Recently diagnosed with fibromyalgia

Hi nella

In the same position have had problems for the last three years began when my son was 3. I am also a single mother. It's tough and some days I feel like a failure but we have to pick ourselves up and not punish ourselves from something which is out of our control. I can't go out and do the things I us to and we spend a lot more time at home. I try and send him in school holidays to activity camps to get him out and he loves them. And we have days in watching films and spending valuable time together. It is so tough but as long as your there for them show then the attention and love they need they are happy.

I explain to my son that my bones hurt think it's the most easiest thing to understand for a child. He copes well with it and understands. I rest in the day while he Is at school to have that bit of energy for when he is home.

It's so tough. But sounds like your doing great and you have a good support network with your partner.

Hi Hun

I to were like you, I feel like I'm a failure as a mum x I have three boys 16,12,2 and my fibromyalgia started after the birth of my 2 year old the pain got that bad that I went to doctors and told them if they didn't help me I would end my life! Gosh those days were so hard but there is light at the end of the tunnel!im to a single mum I also work 32 hours a week it is a sit down job I'm an accounts and payroll manager and it is hard some days but it gets me more determined to fight this condition. I'm currently on quite a lot of meds for this condition

Pregabalin

Amatriptolin

Zapain

Tramadol

Oramorph for when pain gets just to much

This has helped me so much from being in pain every single day and crying with the pain to now I can manage work and deal with everyday life I can't do things I used to like I did with my eldest but I have had huge support from my doctor, pain management,my ot and adult social care all amazing

Are you on any medicine at the moment?

Big hugs xx

Thanks for your replys,I am not on any meds at the moment as I'm on a high dose of ramipril so I have to have a set of bloods done before I can start taking meds.i also have issues with my kidneys which I think has been bought on by my high blood pressure.my pains also started during.my pregnancy with my son who is now two,the pregnancy was horrific I suffered awful spd to the point you could hear my pelvis grinding.

The hardest thing I find is explaining the pain to people, I sometimes feel misunderstood and I have recently had to let alot of people down and it wasn't until I got my diagnosis that I can actually say 'my fibro is playing up today' I do have a sense of relief but then also scared of the prospect of having lupus as I know someone who does and it really affects them.

It's nice to have a place like this where you can just vent and chat with others who are suffering too.

Thank you.😀