Recently diagnosed with Gential HSV-1

Posted , 3 users are following.

Hi Everyone, I was recently diagnosed with Gential HSV -1 from oral sex. I'm so devastated, as much as I was trying to do the right thing he wore a condom. I never saw any sores on his lips, am assuming they were inside his mouth. Within 2 days after oral sex I started to get itchy and red down there. By the 3rd day I developed bumps on my gentials, my doctor did the swab test and it came back that I have HSV-1. I'm shocked out of my mind cause I've never had a STD/ STI expect for now. My question is will I have alot of outbreaks with HSV-1? My doctor put me on antiviral therapy tablets

1 like, 13 replies

13 Replies

  • Posted

    I also have HSV-1 genitals. I got it the same way. The guy didn't have any visible sores and when asked if he had anything I was told no. I've never had anything Std or even yeast infection. My dr told me that this is the best type to have (as though that makes it any better) you don't shed as much. I was diagnosed 4 months ago had the one outbreak and haven't had any sign or symptoms of having another one since then. I know still early but I was told that about 90% of the people only have one outbreak. With that and not shedding as much it's harder to pas on. It's going to be frustrating. I've tried looking up information on the internet but they don't have much about what we have. It's all either oral or genital. But if you look hard and long enough there is some useful information. I am still in shock and can't believe it. Keep wishing I could go back in time even though I know I can't. It's not really any easier to deal with. Even though some of the information I have gotten from this site and the Internet have given me positive thoughts for the future but in the end how can I expect someone I'm with who doesn't have this to risk getting it. If someone else had it and I didn't. I'm not sure I would stick around. But def keep looking in to the information. Talk with your dr and people on here and it will help alittle. Not entirely but will give you a different outlook.
    • Posted

      Thank you so much for your reply. I totally feel you when you said " if you could go back in time". I feel the same way... if only I had self control, but what's done is done. Yes I also heard that type 1 Is better than type 2, I don't know how true that is. Are you taking any vitamins or antiviral meds to control the outbreaks?
    • Posted

      I believe that type 1 is better than type 2 simply for the fact of percentage rates that I found as far as outbreaks and shedding. I have read on both type 1 and 2 and spoke with people online that have type 2 and their stories are way worse than what I have been through. Everything that my dr told me has been true so far. I know every person is different and trying to keep away from stress also helps. Not the easiest but that is one of the key triggers amongst many for outbreaks. I'm not taking any vitamins or antiviral meds. My dr said that it would be best to see how my body reacts before taking any meds because chances are I wouldn't have another outbreak but the small chance that I did then at that time we could sit down and see what I wanted to do. He knows that I'm not big on medicine and don't like to take it unless necessary. But he said he didn't recommend taking medicine for it until you know how your body responds.

      For me it wasn't a moment of weakness I actually went against my gut. Something told me I probably shouldn't believe what he said but I went with it anyway. Who knew that 2 minutes could change you me life in such a drastic way. Yes only two minutes because I decided to go with my gut but it was too late by that time.

    • Posted

      Wow... who would have thought that 2 mins that virus could successfully enter into somebody's body. Reading more upon Genitals Herpes it makes me NOT want to have anymore sex or oral. It's like anything you do sexual can result in an STD. Now I'm scared to tell my future partner that I have HSV-1 in fear that he might walk away. But I know it's the right thing to do. My doctor also said the same thing about the antiviral meds. So I'm just gonna wait and see how it goes. I could only pray that I never get other outbreak.
    • Posted

      Yeah I hope I never get another outbreak either. But the thing is I didn't get any symptoms until like 2 weeks after the encounter so idk. They say it's usually 2-3 days. Sometimes I wonder if I got it from him or my ex. I guess we will never know. I know how you feel about telling your future partners. I found the perfect guy for me but he doesn't have anything and doesn't want it. Which I don't want to give it to him either that is one of my fears. I've told him the risk is minimal. It's harder for a female to pass it to a man but there is still that small risk of I'm shedding so that's a big one to take. He says its like playing Russian roulet every time we are together. I'm stuck in the friends zone because he doesn't know how we can have a healthy relationship. He doesn't want to be limited to having no aex with a condom all of the time or me giving him head with a condom. I heard that I can't pass it through my mouth only skin to skin contact but it still scares me. He says he can't leave me alone he really really likes me but I don't think that I can ever make him happy because of me having this. I can't expect him to risk his health for me. People say if he really cares about me it shouldn't matter but what if we don't work out. Then if he got it he's stuck with that forever and would need to tell his future partners and stuff that. He says he can see me as his wife. We both have never had a connection with another person like he one we have together. We talk on the phone for like 4-5 hours. He's my fairytale come to life. That's the most frustrating part of it. I don't think it will work out in the end because of it but we are both trying and that's what I am going to hold on to. Just make sure you are up front with the person from the beginning. I wasn't with him. I had to see if we would go anywhere and I had to build trust and my ex told him before I could and he took that as me lying to him and now he doesn't fully trust me. He thinks that I wasn't going to tell him. So just from my experience I say tell them from the beginning.
    • Posted

      I really hope everything works out for you guys. I know it's a tough thing to go through in a relationship when one person has HSV. I understand where he's coming from with the whole oral sex with the condom, I'm assuming that could be a little annoying at times. Excuse me for saying this... but if he's anything like me, then he wants to feel that wet tongue lol. But I always heard if you don't have cold sores in your mouth, or if you weren't diagnosed with oral HSV in the mouth I believe it's okay to preform oral sex on him. Cause the sores are only on your gentials not in your mouth.

      I told the guy that gave me HSV and he doesn't care to get tested... like really? This scares me. It makes me think that he had this virus all along and didn't tell me. I'm so upset I don't wanna talk to him anymore. Now I have guys that wanna take me out on dates and I don't know what to do. I feel like I can't trust anybody.

      How do you know when it was the right time to tell your partner? I don't wanna walk around telling everybody I have HSV. Cause some men are ass holes. Sorry for my language

    • Posted

      I figured it the right time to tell my partner when I saw that we were hitting it off and it was headed towards getting serious. I planned on telling him one weekend but my ex told him before I had a chance to. He thought it would scare him away. I hope things work out also. I told him that he can't get it from kissing me and the only way to get it is akin to skin contact while on an outbreak or while shedding but he's too nervous. He has freaked himself out so much that he actually got sore like things in his mouth. I know it wasn't anything because it went away the next day. He's just working himself up over nothing. I would love to give him oral without a condom. It does hurt your throat after awhile. He loves how it feels but still wants to feel mouth to skin. We have had sex three times and never completely finished if you know what I mean. He gets soft and I think it's because he starts to worry about what could happen instead of being in the moment. I feel so bad for that. I really really try to please him but I feel it will never happen. I can't be everything that he wants. I mean I can but this virus keeps him from being fully open. He said if I didn't have this I would have been his girlfriend already.

      What I feel about telling someone from my experience is to tell them as soon as possible. The first date may not be the time see how it goes and if you are interested or not and see if you hit it off. If you do then I would def tell him right away so that way your feelings don't get involved all the way like mine and my guys did. We really liked each other the minute we set eyes on each other. It sounds crazy and stupid and to me it's hard to believe but it really is like a fairy tale. Which makes it even harder because how could I have found what I have been looking for and then not be able to have him. It's cruel. Oh and we used a condom when we had sex. I don't trust people either. I still wonder if I got it from the guy I was seeing or if it was from my ex simply because of how long it took me to get my first outbreak after the encounter. It was like two-three weeks from the time I was with the guy I was seeing then was with my ex so it's confusing. My ex lies too and said he got tested but I doubt it. The trust issues come from my ex as well he went around telling everyone and I have only told three people. My ex, the guy I thought I got it from and the guy I've been dating. He told pretty much everyone he knew and lied and said I gave it to him when according to him he didn't test positive. Yes most guys are ass holes unfortunately. That's why you have to get a feel for the guy before you just up and tell them. That is a big deal and requires some sort of trust. I still struggle everyday but I can say I don't totally want to die everyday anymore. I have realized that my life is more important and that I can live a life even with this.

    • Posted

      Have you guys tried just doing research on the computer for the do's and don't for in a relationship with HSV? Just so he could get a better understanding I know he probably scared/ terrified, I would be to if that was me. But maybe if he takes the time to do research he might feel a little better with situation at hand. Also since you guys are being intimate you need to keep on you antiviral meds to reduce the chance of spreading the virus. I really hope things work out for you guys cause we all need love/ companionship.

      Yea your right... I need to feel out the man first before I discuss my HSV. Maybe am thinking 3 or for dates, by then I'll know if he's an ass. The last thing I want is to be open with a man so soon, then he shuts me down and is walking around telling everyone in town. So I'm just gonna wait a few dates and see how everything goes.

    • Posted

      Yes 3-4 dates is a good amount of time. That's what I waited for. I'm not on any anti viral meds. My dr said that he doesn't think I need any. He wants me to wait and see how my body reacts first. I haven't had any other outbreaks or anything. (Knock on wood) if I do then we will discuss medicines. We use protection when we have sex. He says he has looked it up but there isn't really much on the internet for my specific type so the info that is listed on there is alittle scarey. But I spoke with my dr and asked him questions that my partner had as well as the ones I had and he said we could have a healthy relationship. The chances of me giving this to him was like 1% and that was without meds and without using protection but that is still a big risk for him to take. Even though I told him everything the dr told me he is still hesitant. He said he is taking his time and making sure I am someone that he will be with for a long time if not forever. So only time will tell. I'm not rushing anything and letting him take his time.
  • Posted

    It's crazy, I've tested positive for HSV-1....I never had any outbreaks, just red rashes here and there, some itching and tingeling on (tip of my Penis) my gentials...I get the butt and back of legs prickling, tingling pain everyday, several times a day. My face (chin) also tingles every other day, under stress, staying up too late or under direct sunlight etc. I've gotten red rashes on my cheeks, 4 times now in two months....face feels tender and skin breaks after shower (upon rubbing)

    I feel like I am highly contagious, especially facial (oral) region. (Not sure about genitals)

    Anyway, after all that I've mentioned above to many CDC nurses, and they still tell me

    "You don't need to tell your partner you have herpes, if your only proof of HSV-1 is through a blood test and you have no outbreaks. Guess what? 90% of the population will test the same as you."

    I found this attitude to be so sh**ty and misleading. God knows I suffer from HSV symptoms all day, everyday. They may not be straight up out breaks. But the irritation and the presence of pain and tingling on my lower body is always there. It's amazing how the health service industry tries to separate the two types of HSV as far apart from each other as possible, where in fact there are many of us who are HSV-1 still suffer and also could be just as contagious for both oral and genital areas.

    This is why I am really curious to find out the level of my h. though a test.

    • Posted

      Hugs for you... I'm new to this, I was diagnosed with HSV 1 but I never experienced some of the other symptoms you mentioned like ( the tingling on your legs, and face etc.) Could it be you also have and allergic reaction to something as well.

      Did the Doctor give you any meds to take? If not maybe you should take something for the tingling sensation. I heard people say the taking Lysine is also good for HSV or cold sores.

      Oh and P.S... you don't have to tell your family and friends if you don't feel comfortable. But you should tell your partner if your planning on sleeping with them. I myself would have to do the same as well.

    • Posted

      No I'm not sure of I'm allergic, but uhmm I did get the doc to prescribe me some rash (eczema) cream. I've been using it for two days now and it seems to be doing its job (kind of)... Too early to tell.
    • Posted

      Ok well if you don't see any improvements by the end if the week, I would suggest for you to go back to your Doctor and get something else for it. I wish you all the best.

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