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Recently diagnosed with kidney scarring due to childhood reflux.

Posted , 2 users are following.

anuj40898
anuj40898

Hi guys! I am 35. Recently diagnosed with Kidney scarring. biopsy suggests scarrjng due to reflux nephropathy along with subcapsular bilateral scars. Taking medications for elevated BP, which is under control now. As per last blood trst. Cretanine was 1.4 with other parameters like urea, sodium etc wirhin range. I am not facing other symptoms now. My nephrologist says that the condition might or might not progress in the future.

Is there any one in this forum, whi was diagnised with this problem or similar very long ago and still doing fine. Does this problem necessarily progress to end stage renal disease? Pl give your valuable comments. Thanks!

0 likes, 4 replies

4 Replies

  • louise5027
    louise5027 anuj40898

    Posted

    Hi, I was diagnosed 17 years ago with stage 3. Right kidney badly scarred and working at 30%. High bp controlled with meds, live a normal life and have been exactly the same the whole time with no deteriation.
    • anuj40898
      anuj40898 louise5027

      Posted

      Thanks for your reply! Does your kidney scarring pertain to Reflux nephropathy/VUR? Which range your cretanine levels are in? Will appreciate a little more details.
    • anuj40898
      anuj40898 louise5027

      Posted

      Hi Louise, hope you doing well. Can u please tell me what was your age when you were diagnosed 17 years back? What all tests does your g.p prescribe when you go for a follow up?
    • louise5027
      louise5027 anuj40898

      Posted

      Hi, I'm doing really well thank you, I'm not sure about my cretanine level as my Gp just tells me my gfr is at 55, at last blood test and he's happy with that. I was 35 when diagnosed. I had a couple of tests done to see if the could find any reason for the scarring. One was a macturating cystogram, and I can't remember the name of the other but it when they inject a radio active dye into your arm and scan your body to see where it goes etc. These were done about 16 years ago and I have had any tests since. Other then taking one tablet a day and an annual blood test for liver function and cretanine etc you wouldn't know I had and medical problems at all. He also tests cholesterol and blood sugar. Im not sure if that the norm for CKD 3 with scarred kidney. It would be interesting to know what others have done etc. 

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