Recently diagnosed with Lichen Sclerosus
Posted , 4 users are following.
I had my hystorectomy a little over 1 year ago. Four days after the surgery I ended up back in the hospital with a 7.5 cm blood clot on my rectum and sigmoid colon. after healing from that, of coarse I started with the surgical menopause synptoms. I went on a hormone replacement to help with the hot flashes even though I still have one ovary. These symptoms started to settle down and the itching started thinking I had a yeast infection and used over the counter meds to treat. This didnt work. The pain and itching became unbearable. Sexual intercoarse came to a hault. After numerous doctor visits and different meds I was finally diagnossed with Lichen Sclerosus. I was put on a topical steroid for external vaginal itching and Estrace for vaginal dryness. The cram for itching helps with that but external itching is not the problem its enternal and the pain is crazy. So what do I do for the enternal itching and the swelling and the pain? Im 50 years old and should be enjoying my sex life not having it come to a hault all together.
0 likes, 18 replies
hanny32508 jane31502
Posted
Did the topical steroid stop the LS?
Could it be that something else is happening at the same time since you talk about swelling and pain?
I would suggest you go back to your doctor. Something is off.
jane31502 hanny32508
Posted
I have all the symptoms along with the discoloration and parts of my labia feel dead to me. I also have lots of itching on the clitris.
hanny32508 jane31502
Posted
I wonder - have you read some of the discussions on this forum? For instance the discussion on "An experiment with Borax"? It might give you some thoughts on how to add some different ways to your treatment of LS.
?Another thing - while your LS is perhaps fairly active at the moment, it might not be good for your well being to have sexual intercourse. Any rubbing will make matters worse. With that - I hope you have an understanding husband.
jane31502 hanny32508
Posted
Thank you for chatting with me about this.I have been reading many different discussions. I'm still reading. Never realized how common this really is. Yes i understand about not having intercourse while it is flaired up, I dont need to make it any worse than what it is. Last night was a good night for me and so far today. I keep using the cream and my estrace hoping that will keep it at ease. I'm keeping faith that there is something out there that will help all of us.
jane31502 hanny32508
Posted
So far my husband has been very understanding. I couldnt ask for a better partner.But that doesnt stop the worry about what he is thinking.
hanny32508 jane31502
Posted
Good, the support and understanding of a husband makes a big difference.
?One thing kept circling around in my mind - did you mention pain in the vagina? I would suggest for you to have that checked out. Just to be sure it's only the LS that is bothering you.
?Me too, I'm still dreaming about the day that a real cure will be found. However, there is too little research on LS. So meanwhile I'm trying to make the best of it.
jane31502 hanny32508
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hanny32508 jane31502
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I have had it once that I had to use antibiotics against a bladder infection. It also stopped a flair up. Handy at the time, but I don't think that constant use of antibiotics is the best answer.
?What has helped me as well was to avoid sugar - goodies and such. Next to that I went gluten free, alcohol free, and avoid most dairy products. Haven't had a flair up since.
jane31502 hanny32508
Posted
How does your partner cope with this? Like I said my husband understands but when I try to be intimate with him, he backs away from me, like he is afraid to touch me. Its very depressing for me. Sorry, I just need to pick your brain.
hanny32508 jane31502
Posted
I so understand what you mean - it wasn't easy for my husband either. He was afraid to hurt me. As a result all forms of intimacy were left out for a very long period of time.
?In hindsight - LS did not come overnight. I now know that it was left undiagnosed for a very long time, years I'm talking about. It is therefore so hard to say how long I have had this. And when things go well again you just as soon forget how long after the official diagnoses. I guess it is about three years now that there was an diagnoses after biopsie. By that time it was so far progressed already that all had closed up, only a small opening for urinating left.
?Even with the Globetasol it did not prevent the fusing from progressing. Only after a dilation procedure and after that the use of baking soda baths and rinses did ever so gradually the fusing disappear. The last part above the clitoris was the hardest, but that was solved with the use of borax.
?Meanwhile my husband and I can be intimate again. All is almost as good as 'normal'. But to reach this point I was close to depression. This forum kept me from going down the deepest hole. And I'm happy to communicate with other LS sufferers.
jane31502 hanny32508
Posted
wow. So glad things are turning around for you. I have a very mild case. Im thankful it was diagnosed early. I pray that I can keep it under control. I have gone about a week now to where the symtoms are quiet now. Its still there and I have a couple of spots that I can see,but they dont seem to bother me. Did you ever have it like this and how far between flare ups did you have? This formum has been good for me too. Just to chat with people who know what I'm going through. Its hard to try to talk to someone who has no idea. Sometimes I feel like I
jane31502
Posted
have a STD or I'm being punished for all that I ever did wrong in my life. I just keep the faith and believe that this will clear up. I just pray there is something out there to help all of us.
hanny32508 jane31502
Posted
janet71001 jane31502
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Hi there. Sounds like you've had a really rough time with this. Personally, I don't have the answers but if you could go private and/or see a gynaecologist I would. They have seen it all and know about these women areas. Good luck, poor u.
jane31502 janet71001
Posted