Recently diagnosed with lyme after 4 years of severe symptoms. Will 200mg of Doxy a day be enough?

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Recently diagnosed with lyme disease after 4 years of trying to find the cause of my symptoms. Symptoms have gotten increasing worse over time and include low grade fever, extreme fatigue, painful joints, swollen painful lymph nodes, muscle spasms, brain fog, dry blurry heavy feeling eyes and more.

I've been prescribed 100 mg of doxycycline twice a day for three weeks by my GP. She wants to send me to an infectious disease doctor.

My question is will the doxy be enough considering this has been in my body for 4+ years? Also should I try to see an LLMD or go to an infectious disease doctor first and see what that have to say?

I've seen so much controversy concerning the correct treatment so any advice from experience would be greatly appreciated.

Thanks.

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  • Posted

    Hi Kaitlan

    Firstly sorry to hear of your diagnosis but also its good you finally have an answer and can hopefully do something to improve your health. I am the same after nearly 2 years of searching for answers have just been diagnosed too. My gp has put me on 200mg of doxy twice a day for 8 wks and I'm currently under a local ID Dr too. If you've had it a long time then you'll need a lot more than just 3 wks doxy. I'm also looking at LLMDs too for a more experienced opinion.

    Where do you live?

    Good luck!

    Sarah

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  • Posted

    300mg or preferably 400mg of doxy is needed you will also need either flagyl or tinadazole on top so at one point I took doxy everyday and tinidazole Thursday to Sunday alongside. This will need to be an ongoing protocol no set time. Not necessarily until symptoms disappear as sometimes the feeling of toxicity of the bacteria being killed off lasts longer than the infection so sometimes you don't know until you come off antibiotics and detox the body how you are going to feel. If symptoms creep back especially new ones then time to go back on treatment.

    Protect the stomach while on antibiotics plenty of probiotics. Cut out the sugar.

    The nhs suggested protocol will not cure a long standing infection. If you have neurological symptoms insist on IV antibiotics to give you a good start in treatment. Good luck

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  • Posted

    Hi where did you get diagnosed. I believe I have it and going to go see neurologist professor in London next month. Ref to if doxy is enough in its own is a big question. Omg the different opinions ref to lymmes is endless. Hope it works though what you've been prescribed what was /is your symptoms. Twitching muscles everywhere!!

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  • Posted

    Hi Kaitlan39307

    I am so sorry to hear about you finding out that you have lyme disease. I just found out that I have it as well and the crazy thing is they are not sure as to how long it has been since I caught it  (smh).... I am on the doxy 200 mg and that seems like it is not working at ALL... I am in the process of tryning to find me an ID physican as we speak... Once I do I will share INFO with you!!! Signing off ttyl..

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  • Posted

    I was infected 21 years ago and wish I had gone on 4 weeks of doxy straight away. I did go on a short course of doxy because the doctor did not know what the problem was so put me on a standard two-week course to cover most infections. I felt at the time that it didn't come close to touching the disease but 2 weeks was not nearly enough. I feel that nothing will work now - the disease is too firmly entrenched - and advice on the internet and in literature is inconsistant to say the least. Maybe one day there will be an approved protocol for long-term Lyme disease but at present it is very haphazard.

    I would go for something a but more powerful than 100g twice a day for three weeks as that is likely to do more harm than good.

    ?Good luck and let us know how you got on! 

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