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Recently diagnosed with ME anyone under 25 in the same boat??

Posted , 10 users are following.

Meg97
Meg97

So I can’t really go into detail with my story or symptoms because I’ve apparently already done far too much and I’m feeling pretty awful. 

But I’m waiting for a referral to see a specialist about being diagnosed with ME I’m twenty years of age and recently given up my education at university to move home in the hope I’ll get a hold on the condition and be well enough to return next year. I’ve read and researched so much over the past few months in order to feel more normal and frankly less alone. My family don’t and can’t understand what I’m going through, what my day to day life is now like .. so it’s a blessing to have you all here going through the same and being able to comment and relate to. I don’t have a problem with anyone responding or commenting below! The more the merrier. But I’m particularly looking for anyone under the age of 25/30 as I’ve not seen many and I’d really like to have someone to talk to closer to my own age smile 

Many thanks 

Meg. 20. Cornwall

0 likes, 22 replies

22 Replies

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  • abbiem4092
    abbiem4092 Meg97

    Posted

    Hi! I’m 23 and got diagnosed with CFS and fibromyalagia in the summer. I completely understand where you are coming from with your family not understanding. I actually get very upset with my family when my mum says ‘why aren’t you doing your uni work right now’ (I’m in final year uni and literally cannot do it due to brain fog) and when I explain they just don’t understand! 
    • Meg97
      Meg97 abbiem4092

      Posted

      Hi Abbie! Thank you for your response 

      I’m yet to be diagnosed 😴 but I’m convinced as are my doctors, friends etc.. 

      my family will get there I have hope. It’s jusy a big change for us all and it’s not them experiencing the everyday pain and struggles. 

      Definitely don’t regret intermitting for the year.. I have hopes to go back in September and continue my second year of uni but something tells me it’s just not going to happen! I don’t know how you manage x

  • linesy91
    linesy91 Meg97

    Posted

    I know where you're coming from, it's so hard when no one else really 'gets it.'  My family are supportive and an amazing help but they can't ever understand what it's like. I had to give up Uni in Canada and move home 2 years ago.  I still won't ever lose hope of getting better and you shouldn't either smile check out healthrecovery on youtube, he is around my age and always has good advice!

    • Meg97
      Meg97 linesy91

      Posted

      My parents are trying.. some more than others (parents are divorced so there’s multiple😂wink and as for uni.. some days are better than others some moods and mental health days are better than others.. some days I’m more determined than others to get up and get back into it and others (like today) I’m thinking.. it’s been 6 months with the same symptoms and I don’t feel I’m getting anywhere.. it’s such an exhausting condition to have - both mentslly and physically.. I just need to stay positive and take one day as it comes. But I’m such an acirive and outgoing person it’s absolute torture to be bedridden and have my dream taken from my grasp. 

    • linesy91
      linesy91 Meg97

      Posted

      Haha mine are divorced too, my Mum definitely understands more because she sees the effect it has on my every day.  It's hard for people to understand when they don't experience it first hand.  I have had this for 2 years now and my main advice for anyone in the early stages is please don't push yourself, you'll make it so much worse in the long run.  Rest more than you think you need, save energy for recovery smile.  I am too, I played football in Canada but haven't been able to play sport since :'( 

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