Recently made aware I’m hypermobile, could this be related to my ill health.

my story is a mixed bag so I will apologise before hand.

i am a 39 year old female who up until 2 years ago seemed in reasonable health.  Then summer 2016 I developed what I thought was an upper respiratory virus which led to head wooziness, brain fog, motion sickness, sense of unbalanced, fatigue and joint aches, tension headaches and neck pain. Unexplained petechia and perpura at different times, my skin is very sensitive and pale gah translucent, an explosion off cherry moles aswell, flare up off rosacea eye cysts and sun intolerance.  Numbness in feet and pins and needles in extremities. Doctor thinks that this has all been viral and continues to be her diagnosis.

The fatigue i had had been dealing with a couple off years before that had iron fixed, put on vitamin d and had blood tests to rule out other illnesses. Everything came back clear and fatigue continued.

i visited ent twice who ruled out anything to do with ears, neurologist who beleives it’s not in the brain but possibly systemic, brain mri came back clear so no MS etc.

was then referred to rheumatologist who ruled out autoimmune but said casually I was hypermobile. With hyperextension in my elbows, fingers, knees and ankles, nothing further was mentioned.

i still suffer from head wooziness every few weeks, this is not vertigo but rather a spinning sensing within the brain without visual movement. I think hormones, tiredness and iPad glare have a part to play in this, however no one can give me a reason for it, I experience titinus from time to time, the occasional tension headache, brain fog daily and a general feeling off fuzziness within the head daily. My fatigue is still very much relevant as is the fatigue in my legs when I go up stairs and in my arms when I am moving using them for any length of time ie hoovering, using hairdryer. I still experience pins and needles in hands feet, legs etc and numbness in feet, heel and toe pads  mainly.

I have been suffering from tendinitis in my left Achilles’ tendon with nodules for months the pain now an everyday occurrence, I have pain in both pads of feet and have to wear soft cushion  soles or it flares up. Now I realise this pain may be linked to my hyper mobility. I often experience knee pain as if I’ve pulled my ligaments and elbow pain, pain in my pinkies, grinding at the bottom of my spine and muscles spasms in lower back  and across my shoulders. Especially if standing for any length of time. 

 I sprained the top of my foot twice, and had inflammation in the cartridge between my ribs and chest bone twice over the past couple of years, I often feel like I sprain the top of my hands a lot recently. I can just drop objects out of my grasp on occasion to, 

i always had what I thought were week ankles, falling over and going over them all the time, wearing high heals was a no no unless it had a wide heal. To find out that they were weak for a reason. And I have pulled my groin 4 times in the recent weeks moving the wrong way. 

I have a lot of bruising especially on my arms and legs  with minimal trauma,  IBS bloating and pain and unexplained xanthelasma under my eyes with no high cholesterol. I also have high pallet and over crowded mouth, and sadly problem with anaesthetics to my dismay.

i am very aware none of these could be related n any way but I feel there is something wrong and I’m not sure where else to go medically. Oh and I’ve recently had an MRI of the spine, nothing has shown up in any test, wish I had MRI of cervical spine though as I feel some of my symptoms may be held within that area. 

Sorry for the book book I guess I’m just clutching at straws.  Could some of this be  caused of hyper-mobility I just don’t know?.

Regards

tracky  

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