Recently prescribed esmya

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Hi I've been taking esmya for a month now to shrink my 8cm fibroid in my womb my gynaecologist advises 2 three month trials of these to try & shrink it before a hysterectomy as she is reluctant to do the operation as I have had a PE last year and suffer from sluggish blood flow in my right leg. My leg is so swelled up at the moment as my womb is tilted & the fibroid is lying on the top of my leg. Has anyone had success in shrinking their fibroid with esmya? Thanks

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  • Posted

    Hi Gail, I'm a fraid it didn't work for shrinkage for me but was great to stop periods & get a bit of respite that way. I had it for 3 months then a break of 1 month, another 3 months, scan hadn't shrunk, zoladex implants for a 6 months (one infected as dr didnt sterilise or wear gloves) it didn't really work either, then scheduled for a UFE (which you should maybe research - not sure re it & a PE though, as appreciate just how serious those are with pelvic & abdonimal surgery) then after the UFE didn't happen (as seemingly my huge 15x15cm fibroid had very small arteries, I went back on Esmya for 3 months, then a break of a month then another 3, but as soon as my period came back even for one month I'm aneamic again! Anyway I have a specialist appointment in June for next step, as the consultant appointments take an age to come round with our good old NHS trying its hardest with the respurces they have. But even though Esmya has seen me through since my supposed UFE in November, I cannot (& proably shouldn't have any more) so we'll see what the next guy says at the end of June re a less invasive procedure than hysterectomy (as I'm not keen for that if I can avoid) If you'd like to know more details please just PM later next week. All the best wouldn't be rushing in to a hysterectomy though. Did you gynie say you couldn't have a UFE to shrink it? If you are having a surgical operation can you have it vaginally, or keyhole to reduce your risk of a dvt or pe? Do they do mysure in your area? As I think that may be for fibroids under 10cm, which yours would qualify? I don't know a lot about it or if they are all done vaginally, but I know a lady from the surgical team after I had a gps the other day had a big fibroid taken away vaginally by mysure. Just some things to look at for you.

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  • Posted

    Hi Gail

    I took 2 sets of 3 months of Eysma with a 2 month gap in between. My symptoms have improved, less pelvic pain now and periods are lighter. I have not had another scan but judge the results from how I felt. I think it would be hard to see improvement on a scan for mine as lots of smaller ones.   Give it a chance, it's worth trying. We are all different and they work for some people.   Do you know if the fibroid is inside the womb or on the outside?  I did hear somewhere the tablets work best on the ones inside - intramural and submucosal,  than they do on the subserosal. Only one opinion though that.  I was glad to get some results with them and have not taken any now for over a year.   Good luck x 

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  • Posted

    Hi Gail,  I have just completed my 3 month course & no unfortunately I have not had the success I was looking for.  The fibroids have shrunk very slightly, I had no side effects apart from a few hot flushes, but upon my scan a few days ago I was told the lining of my uterus had thickened quite a lot.  I now have to have a biopsy done.  I feel I have prolonged the inevitable of having a hysterectomy & just made matters worse than before.  I hope you can get sorted, maybe look at embolization rather than Hysterectomy.  Good Luck

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    • Posted

      Hi Joanne, Please be aware and the Drs should also know this, that the esmya can cause a thickened uterus lining. It is a side effect and is noted in research.  It doesn't mean there is an increased risk of cancer, it has increased due to the esmya and they have to bear that in mind. I cannot remember if it states that once you stop taking it that the lining will reduce again. Would have to find that out.  I don't think you have made matters worse at all. If the fibroids have shrunk a little then it has done it's job and was worth trying. That reduction could have I say 'could have' reduced symptoms enough to prevent need for surgery. In some people that can be the case..or... it can make the surgery easier if you decide to still go ahead.  I thought they would maybe leave the biopsy for a while if the lining has only just increased when taking esmya and just monitor. If the biopsy is painful you can ask for a general anaesthetic. You don't have to have it done. 

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  • Posted

    I'm almost sure that thickening of the lining of the uterous is a temporary thing whilst on Esmya. Double check with your gynie/GP. x

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