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Just thought I'd share my story and see if anyone else has had a similar experience as me. I know that my experience of Lyme is not the norm except for the struggle for treatment which seems too common.
About 5 years ago I became very ill with flu like symptoms, aching joints and fatigue. This lasted about 2 weeks but after that I started getting a severe pressure feeling In my head with occasional stabbing pain. I developed floaters in my eyes and felt zoned out and anxious. Felt like I had a brain tumour or something but after further analysis I this ruled this out. I'd already been to the doctors and found them less than helpful. Basically told me to come back in 2 weeks then come back in 2 weeks after that. I looked into it myself and saw Lymes disease as a possible cause. I became ill 13th Oct 2010 i knew this for sure and it clicked I had been camping 3 days before this and had picked up a few ticks. I live in the Lake District and have had many bites before and was under the impression that there would be a rash if there was lymes , I soon found out thus was not always the case. A simple google search will tell anyone this. Went to the doctors with a sense that something would be done. I was wrong he was ignorant of the rash and the disease in general. I got 'you don't have Lymes' it's probably a headache' and the famous 'come back in 2 weeks'. I gave up and just accepted it. I didn't have any other lymes symptoms so I thought he must be right.
The headaches continued as well as random nerve pains such as sciatica ,twitching muscles and severe migraines. This went on for nearly 2 years from the age of 19 to 21 . I couldn't concentrate and I struggled day after day and it destroyed my hopes of going to uni then one day it suddenly got better.I assumed I'd beaten it. I went back to collage at 21 and finally got to uni aged 23. After 3 years free at 24 and after first semester I started getting the familiar tingling in my head, this escalated into headaches the same as before but much worse, like being stabbed in the brain. I couldn't think or even speak, my girlfriend took me to A and E because I was basically blacking out she had to give all my info at the hospital. I was kept under observation and given strong pain killers. I went to the doctor and told him my previous suspicion of Lyme, I'd done research and found that it could come back. He said migraines and gave me pills. End of. I fell behind and struggled basically with living in general. I requested a new doctor and she at least have me blood tests- normal. She listened to me but was dubious of Lymes as I had beaten it before with no treatment and had no bodily symptoms, all neurological. I told her I was never Ill, in fact never had an infection in my entire life and I don't even know what a cold is really like. It sounds absurd but true. If anyone could beat it I could it just must have been lying dormant. She agreed to a Lymes test which was positive as I expected! After 5 years and even doubting myself I had finally proven something I had known nearly from the start.
I have been referred to a specialist in infectious diseases and have been put on doxycycline 100mg 2x a day for 14 days. Now I hope I can get better but I'm aware many people have had trouble with the anti-biotics regarding strength and efficiency. Any help would be appreciated and thank you for reading my story.
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