Recovery!

Posted , 6 users are following.

Almost 7 months since diagnosis and self care is the way forward! I dont think i'll be 100 percent ever again or at least not for another few months minimum, but with vitamins, sleep and a lot of water I'm beginning to feel better smile

The eczema that developed following GF has not gone away but it is managable and mainly due to the cold months, im still tired but I'm a student so I was pretty exhausted even before becoming ill. Im vegetarian which might not have aided my recovery time but I eat many many many nuts and pulses etc, meat substitutes and soooo much fruit and veg. The vitamins i take are as followed:

-evening primose oil

-vitamin c

-hair, skin & nail vitamins

-vitamin b-complex and B12

-acidophilus (live bacteria)

-loratadine (helps with the itching from eczema)

Slowly slowly SLOWLY i am beginning to feel myself and I wanted to post this to reassure people that it does get better even if it does feel like the GF is coming back when you fall ill with a cold for example. Just remember that your health is more important than your exams or finals or your work and that you must take time to relax, get good sleep and take care of yourself.

I defo found a lot of reassurance in this forum smile

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17 Replies

  • Posted

    Are your lymph nodes still swolen?
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    • Posted

      Most of my symptoms have disappeared but lymph nodes are still as swollen and painful as they were. I wonder how long it will take for them to disappear. I'm about 12 months in.

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    • Posted

      I was the same Catch the Bus, even when I started to feel better the lymph nodes, one in particular in my neck, was still quite sore. That does fade over time, it still occasionally gets mildy sore if have a flu or virus or something, but it definitely will go away and it is normal that it can take this length of time to go but it still will go!

      Craig

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  • Posted

    So good to hear you are improving. Slowly is how we all move forward it seems. 19 months for me. But I'm so grateful to be where I am now an I vividly remember where I've come from. I am in the second week of the flu but have made it much better than I imagined.

    I've read that adding more probiotic will cure the eczema. I see you are taking one culture.

    You are very wise to take good care of yourself!

    Prayers, Rhonda

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    • Posted

      Still thinking of you Rhonda and Catch the Bus. Thanks so much for all your support and prayers for me too Rhonda, I continue to find your words and presence on the forum a great source of inspiration and help - you are a ray of light and your faith that comes through is a real symbol of hope and strength for us all that are going through tough times!

      Craig

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    • Posted

      Hi Brent, I have my times when I am in a dip all the thoughts flood me of how I'll never be fully recovered. I try to remember False Evidence Appearing Real.

      I have struggled a bit today. I have had the flu for almost 2 weeks. Fever for 12 or 13 days. My body feels pretty beat up. Then my mind and emotions want to follow.

      I have decided to keep looking back only to help me remember where I've been. I try to focus on what I can do today. I have a real attitude of gratitude that I have never experienced before this.

      Please don't beat yourself up. Our circumstances are different. I've not had to work nor have I had to experience the heart break of a divorce during this fierce battle with EBV. Nor have a child at home.

      I try to accept where I'm at each minute and look forward to better ones to come. I do often feel lonely as my husband just finished 14 10 hrs nights with out any time off. I often feel lonely because only those of us who are fighting this knows the real battle we are enduring.

      My strength comes from the Lord Jesus also my hope and my help.

      I listen to others who have overcome ME, CFS, and EBV.

      I hope you soon see and feel more things to focus on to remind you that you are one day closer to living an enjoyable life and not just existing.

      Prayers, Rhonda

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    • Posted

      Thanks for sharing these words and your feelings Rhonda, you're doing all you can to approach things in the right way and God sees that. I believe God will hear and answer your prayers Rhonda, I really do.

      I feel I've not been as genuine or righteous as I could Brent, I do try to give positive messages here but in my own situation I've been struggling a lot lately and finding it hard to stay encouraged in difficult times when things just don't seem to change. My reasons are different with back pain and the life issues that has caused as opposed to the mono here, but the longevitiy has been similar and there are some parallels in the emotions and frustrations experienced.

      Praying that God can help us all to have a better attitude and perspective, even in the tough times, and as you say Rhonda just to be grateful for what we have each day and what we can do rather than what we can't. I've not been as grateful as I could be and know I need to get better at that.

      Thinking of you all and hoping for a good day today for everyone, with God in our hearts and leading us every step of the way and give us renewed hope and belief in our recovery.

      Craig

       

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    • Posted

      Thank you for your prayers and words of encouragement. I keep holding on and believing that it will get better. Very hard for me to relax because I was always very active. I am hard on myself because I could have avoided this. I know where I contracted this virus and I didn’t listen to my inner voice when I kissed the person. I guess I sorta sensed something was wrong when I first kissed her but I continued. Bad mistake! Later on I found out that she had mono before and wasn’t feeling good when we went out . Thus, here I am sick today. 19 years of being married and the first person I go out with after my wife leaves gives me mono.
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    • Posted

      Hey Brent,

      I understand too because I was so active also and it hits you hard when you can't do the things that made you feel free and happy. This won't be forever though (despite it feeling that way), you will be free again and be active again, I do believe that. And you musn't beat yourself up about how and where you caught the virus, I did that too, I think it was from a girl I kissed too but it's not your fault, such things happen and you didn't do anything wrong - it's just very unfortunate and I know you've been through so much lately and just wanted you to know that still rooting for you and believing you will get there Brent - without any doubt you will get there - stress is such a factor in this and this hard time in your life (including every ounce of the harm caused by the virus) wlll pass and be gone never to return. Thinking of you man, feeling your pain and remember this won't win - you will prevail and God will give you the strength as I know you're weak and weary, so don't worry.

      Craig

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    • Posted

      Thank you so much for your support. You words give me so much strength. You are truly a blessing to everyone on this site. God is truly going to bless you for everything you do for everyone on this site. Thank you so much.
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    • Posted

      Oh Brent thank you so much that is such a kind thing for you to say. I really just want you and everyone on the site to be better, I know the hell that mono can be to go through and want to let you know that there is hope and recovery on the other side of all this. You will definitely get there Brent, without any doubt I’m still believing that – praying God brings blessings to you and everyone on the site, I do believe He will. Thinking of you.

      Craig

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  • Posted

    Hey Po,

    It's good to hear from you and it definitely sounds like you've been through such a tough time. I really do recognise what you're saying at 7 months from my own experience of the virus at that stage. I remember at that time thinking I was maybe a little better but would never feel 100% again - I felt that this would be the new normal and would have to get used to a lesser way of life. Let me reassure you Po that you WILL make it to 100% or as near as again, it took me around 10 months to see a real breakthrough turning point, and it came quite quickly after months and months of very slow progress. It still took time after that but life became liveable again and I was able to do things again which was the key, so hang in there and remember you WILL continue to get there and back to full health again - might not feel that way now but it will come!

    Sounds like you're doing all the right things with the vitamins, they look spot on to me. Siberian ginseng was great for me too, and maknig sure getting a good multi-vitamin on top of that is key with Vitamin D also.

    Hang in there Po and remember you're gonna make a complete and full recovery from this still!! Yes you're right when you get a cold or whatever it can hit you harder in the first couple of years especially after mono, but that gets better too and things do settle and your body resilience returns - it's amazing the powers of recovery God gives your body!!

    Take care and hang in there - better times ahead for you I truly believe!!

    Craig

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    • Posted

      Hang in there Po - you will get through this without doubt I believe that. Still thinking about you and rooting for you - good luck with your exams and remember whatever happens your health is most important of all, don't put yourself under extra pressure just do what you can without overdoing it as this virus does still need rest and recovery time.

      Craig

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