Rectal prolapse

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Not sure if this is the correct forum to post in but I think I have a retal prolapse and have had a cystocele and rectocele confirmed.

i have posted previously about  the pressure I have been experiencing for about six months in my rectum/anus area and have recently had a colonoscopy

The results was divicular disease and nothing on the rectum even though have been complaining of  soreness inside.  I did think it may have been hemroids but it’s proved that I haven’t any.

Has any got a rectal prolapse, is it uncomfortable sitting and need to lay down a lot for relieve.  I feel like I am on a roundabout and can’t get off.  I have seen a specialist recently who fitted a pessary but have had to get Gp to take it out a couple of weeks later as was so uncomfortable.

I thought the rectal prolapse would show up at a colonoscopy but maybe as I was laying flat it wouldn’t have.,

 

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  • Posted

    Hi, you said you have been diagnosed with a cystocele and a rectocele. Are ther any plans to have repairs or aren't they that bad at the moment?

    It could be that the rectocele has trapped waste and that would make it uncomfortable to sit down.

    The other thing , because you feel sore, it could be an anal fissure. They are splits inside the rectum and are really painful, and the pain comes on worst when you have a bowel movement and can last for several hours.

    Dont worry too much about diverticulosis, I was diagnosed when I had a colonoscopy, also had a polyp and a fissure.

    Why do you think you have a rectal prolapse, do you have the symptoms of one. I'm sure the Dr doing the colonoscopy would have seen this if you had it.

    Try not to worry, it's possibly just the rectocels that's causing the discomfort. Just make sure you don't get constipated. Things like Laxido/movicol/miralax-- all the same thing, just different trade names, are good to keep things soft. Magnesium citrate tablets taken every day, are also very good. I take both on the advice of a colo rectal surgeon.

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    • Posted

      I managed to have a look a few weeks ago and found a white pea like lump which I managed to push back inside rectum, since them it feels fleshy.  My Gp thinks it’s connected to my two other porolapses booth grade 2. 

      i have seen a consultant who put the pessary in himself, I forget which department it was now. Obviously it was of no help and I had it taken out as felt it was digging into me.  The only follow up is with his pessary nurse for changing in May.

      My GP will refer me again if I get the all clear from colposcopy.

      Since I had that a week ago I have  developed stomach  pains and constipation which is news to me so not sure what’s going on.

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    • Posted

      Honestly, it’s just not on that we have to try and self diagnose. The medical professionals should know what is wrong by our symptoms. I was so anaemic I was on the point of passing out several times, looked like a ghost and was dizzy and ill, but when I went to my gp and asked for a blood test, she ordered it, and I asked if she had requested a haemoglobin one, she’d not put that down. Turned out I had four gastric ulcers that had been slowly bleeding, my iron stores were so low they considered a transfusion.

      The systems all wrong. While it’s great to come on a forum like this, and almost be sure someone will come along and help, it shouldn’t be necessary.

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    • Posted

      Hi Laura, I hope you are OK now and getting the medical help. I have little faith in medical professionals but I understand what you are saying. For over two years and lots of pelvic examinations my prolapses were misdiagnosed, I actually got them in 2014 the same time as an inguinal hernia and I kept going back to gp who put the discomfort as the inguinal hernia or ovarian cysts that were also discovered, I was referred to a Gynaecologist who performed a laparoscopy and hysteroscopy as it was found I had endometriosis but did anyone see the prolapses? I finally was told by gp I had a mild bladder prolapse early 2016 and referred for pelvic floor physio which I had a course of which didn't help, didn't get referred to urogynae as it was just mild but by October saw one privately who couldn't understand that diagnosis as I had a grade 3 rectocele that was found to be a rectoenterocele during surgery and a grade 1 uterus prolapse, why did all the professionals not see this? I think I have another prolapse of some sort but you just give up sometimes and have to endure all the pain and discomfort until maybe one day someone diagnoses something and you get help!

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    • Posted

      Hi Donna, just having a mini rant🤨 Yes I had rectocele and coincidentally and ovarian cyst, had them both operated on at the same time, cyst by laparoscope and rectocele vaginally. Rectocele failed approx six weeks later.

      That was self diagnosed as well, saw my go and explained all symptoms to be told my ten minutes were up and if I wanted to wait an hour until surgery finished she would examine me,as she was running late. I asked if she could refer me privately, I am insured, and yes, make an appointment and ring for letter, so self referred to consultant. It’s just not right, it’s no wonder they don’t find things, they don’t look even when the patient is dropping clues like confetti.

      Not ok, but not anaemic,anymore lol. Yes we are the people who have to live with the pain day in day out.

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    • Posted

      Hi Laura glad you are not anaemic anymore! Yes it's not good that we have to keep going back with our symptoms, it does wear you down! I go for months not going back trying to hold down a job and family life being in pain and discomfort to get spoken to rudely and made to feel that you're wasting people's time, I know it well sad Let's hope all the people who are going through these problems on these forums get the help they need sooner rather than Later! Rant over for me too smile Good luck in all your future care x

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  • Posted

    Hi Taff. Rectal prolapse is best shown on a proctogram. I assume your colonoscopy results go back to your GP now or are you now due to see a Colorectal Surgeon.? If you want to check rectal prolapse you need to ask for a referral to a Colorectal Surgeon who specialises in pelvic floor. You can google "colorectal pelvic floor surgeon in _____ (your area)." and get referral from GP. Not all Colorectal Surgeons or hospitals deal with this. I have just been transferred to another hospital to get rectal prolapse tests.

    If you have a weak pelvic floor and rectocele then the rectum has no support and likely the posterior wall could be wobbly and causing the rectal discomfort. Can you ask for referral to pelvic floor physio as it might alleviate some symptoms? Do you just have discomfort or pain in your rectum? Pain could be a nerve.

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    • Posted

      Something pops out when I stand up and more so go to the loo.  I was treated at first for  piles  even though three GP:s couldn’t feel any.  The symptoms pointed to having them though.  

      i think  the next step is another referral if I had the all clear from colonoscopy.

      This  last week I have developed a new symptom of stomach pains and constipation which as you can imagine is making things worse.  At this stage I’m not sure if it’s medication that’s causing it, but I know it’s making my problem worse.  I may have to make another trip to the dr.

      Back  to the  lump, I managed to look at it a few weeks ago it was like a white pea.  Now it feels fleshy and sometimes I can push it in but it comes out again..  I also feel as I need the loo again after going.

      My GP believes there is a connection to the prolapse which are grade 2 and I have had a hysterectomy years ago so have nothing to hold the prolapses in.

       

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  • Posted

    Hi Taff, I have similar symptoms to you but slightly different story. I had a posterior repair and enterocele repair for a grade 3 rectoenterocele in December 2016, I never felt the benefits of the surgery as it still felt I had a prolapse of some sort but just slightly further back in the perineum or rectal area. Urogynae discharged me at six weeks post op and said I was healing fine no prolapse, sought advice from a private colorectal surgeon at 11 weeks post op, he said I had a small rectocele at that point but as he didn't do that side of colorectal surgeon he recommended another and said wait a few more months before seeing him which I did. He ordered a colonoscopy and Mri proctogram which come back relatively normal but things are still the same, I pretty much gave up but I am still in the same discomfort as you mention. The Mri proctogram was useless at diagnosing what I wanted to as you have to lie down in a scanner to push some gel out. I have read a standard proctography would diagnose better such as rectal prolapse and it mentioned that on the Mri I had done privately. I mentioned it to my gp and he said he'd look into it as he didn't know much about it! I feel like giving up trying to discover what's wrong so I know how you feel! Fingers crossed you get some answers.

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    • Posted

      Hi Donna

      The best way of determining cysto recto entero avulsion is a 4 D ultrasound. You are assessed lying down as well as standing up which is most important.

      This was performed by a urogynae whose specialty is in this area. Absolutely achieved the best diagnosis !

      Keep persisting girls you're truly worth it.     Peta

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    • Posted

      Hi Peta thank you for your reply. I'm in the UK and would not know how to find out where they do 4d ultrasounds and if I could get one. I had to see a private colorectal surgeon to have a private Mri proctogram which was useless as it was lying down, even on the report they suggested standard proctography but I have had no luck going back to the gp and requesting that people just don't understand! I have read and researched that if a rectocele and enterocele repair isn't done correctly it can cause an an area for a patient to then get a rectal prolapse as basically it's just caused what is prolapsing from repro lapsing in the same area which is what I feel has happened to me but getting anyone to listen to me and have any tests to prove this is impossible sad Thank you for your help x

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    • Posted

      Hi Donna

      I'm in Australia and it seems our medical system is a little easier. I'm just wondering have you searched on the net for 4D ultrasonography. 

      When I consulted my urogynae he organised the 4D ultrasound and Urodynamics testing so that he could determine appropriate treatment options with all the info before him.

      I don't know how your health system work but I have learnt that you have to be very persistent in pushing for what you need.

      Good luck, Peta

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    • Posted

      Yes unfortunately it can be very different in the UK, some health authorities are great but others not. Thank you for your information though and good luck to all your future treatment also.
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