Recurrence of dermoid cysts on the ovary anyone else has this?

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I had multiple dermoid cysts that were found last November 2013 as on ruptured so was taken to A&E, I had 4 dermoids 3 on the left ovary in total over 21cms and one on the right ovary 9cms. They were removed by open surgery at the end of November. The surgeon managed to save my right ovary as I am 36 and have no children this was the best outcome for me.

Last week I had terrible pain and went to A&E which resulted in me going for a scan last Thursday where it showed I have 2 new cysts on my right ovary, one is already 6.9x6.6x 4.9cmsand the other daughter cyst they called it was 4.9x3x4cm. Has anyone else had the return so quickly or grow so quickly there was nothing there in December so in 5 months they have grown to this already. I know they have to be taken out as over 5cms but has anyone else experienced this? I am sure this time I will loose the ovary.

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  • Posted

    Hi there, sorry i cant help to answer your question.  I did want to ask what symtoms you had before the cyst rupture?

    It seems on here we all worry so much and alwasy assume the worst.  Hope you get the answers you need. x

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    • Posted

      Thank you, i am seeing my consultant on Tuesday so am sure i will get some answers then.

      I had a dull pain in my left side hip for a while but nothing that i thought anything of though, but the pain increased and was very sharp and i had it for about a week it traveled across my stomach and was very sharp but i stupidly thought i had trapped wind....this was for about 5 days then on the 6th day the pain was really bad and i felt sick as well, i took painkillers and went to bed and when i woke up in the morning i couldn't get up my whole stomach was distended and i felt like it had dropped was very painful. i went to my GP who sent me to A& E with suspected apendicitis and they did scans etc and found all the dermoid cysts - so if one of them hadn't ruptured i wouldn't have even know i had them - i thought i was just getting really fat...

      I didn't have a huge amount of symptoms to be honest but looking back i can see them now, my hair thined out lots, my skin was dry, i was tired a lot, the constant dull ache and having to go to the toilet i would wake up twice in the night to have to pass water - the pressure of them on my bladder and also my bowel as well. But otherwise no symptoms, my periods were regular no bleeding in between.

      Hope that helps you?

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    • Posted

      Sounds like you have been through it.  I had only heard of poly cystic ovary syndrome, didn't even know we ladies could get all these other versions!

      I have had the full ache/pain in my hip for a while, have hair thinning but I think's that due to menopause.  Also had lots of acne now I think about it.

      If they do say you have to lose the ovary, get a second opinion. I am not a doctor or anything but if you want children, it's always worth speaking to another doc. Obviously you don't want to put your health at risk but no harm in asking.  Hopefully your doc will take into account your age and should do all he/she can to keep the ovary (without putting your overall health at risk).  I had dodgy cervical cells in my 20s, the consultant said I needed a hysterectomy but spoke to somebody else and he said no I will just repeat the minor operation first and see how it goes.  I have two kids now - so the moral of the story is, always seek every option available.

      Good luck with everything and let us know how you get on.

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  • Posted

    Hi Marie, its been a few months since you posted on this forum, so your condition/circumstances may have moved on by now.  I found your post when I searched for "reoccurence of dermoid cysts".  I too had dermoid cysts surgically removed a few years ago.  Unfortunately, by the time they were discovered (as a result of severe abdominal pains because the cysts were twisting on their "stems" attached to ovaries), they had grown around both ovaries, so both cysts (right handside cyst = 14cm and left handside cyst = 11cm), had to be removed by surgery (via c-section) plus my 2 ovaries had to be removed too.  The shocking thing was an ultrasound a few weeks before the surgery only identified 1 cyst on the right handside (11cm at scan which then grew 3 more centimetres in 3 weeks at time of surgery), - ultrasound didn't show up 2nd cyst on left ovary!  It was a shock to wake up after surgery to find out I had 2 large cysts removed plus both my ovaries. I never had any children and went into menopause at 40 years old.  Now a few years later since my surgery, I am experiencing some of the same symptoms again.. extended abdominal (I look like I am 6 month pregnant), pressure pains in lower left hand side.   A few months ago, I did have an ultrasound - but nothing showed up (but I don't have a lot of faith in ultrasounds after it failed to shown 2nd cyst on my left ovary a few years ago).  So now, I want to go back to my doctor to talk to him again about why I am experiencing these problems again (is it possible that I have more cysts or fibroids in my womb as I have no ovaries now??).  I don't know if cysts can reoccurr elsewhere in the reproductive organs??  I feel very tired all the time.. I may ask for an MRI this time to identified issues.  Do update me on your situation to see if highlights reoccurence probabilities of dermoid cysts.

     

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  • Posted

    Hello, im late in seeing this but I have had multiple reoccurances of bilateral dermoid cysts. My first surgery was in 1996 to remove 2 large 10cm cysts by laporoscopy, then bilateral dermoid again in 2008, then unbelievable in 2011 drs found a 10cm dermoid in the left ovary and 2 dermoids on the right ovary 4cm each. Miraculously I somehow got pregnant, had a healthy baby in 2012, and after csection the dr attempted via laparotomy to remove the 3 tumors but he said he could not without removing both ovaries. I opted to keep the tumors and ovaries intact so I could try to hv one more child. Now November 2014 my dermoids have grown to 13cm and 6cm and 5cm, bilateral. Th ey have been growing rapidly in the last 4 months and I need to have surgery soon to remove them, but desperately searching for a surgeon that can remove my eggs before taking out both ovaries. 

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  • Posted

    Hello, im late in seeing this but I have had multiple reoccurances of bilateral dermoid cysts. My first surgery was in 1996 to remove 2 large 10cm cysts by laporoscopy, then bilateral dermoid again in 2008, then unbelievable in 2011 drs found a 10cm dermoid in the left ovary and 2 dermoids on the right ovary 4cm each. Miraculously I somehow got pregnant, had a healthy baby in 2012, and after csection the dr attempted via laparotomy to remove the 3 tumors but he said he could not without removing both ovaries. I opted to keep the tumors and ovaries intact so I could try to hv one more child. Now November 2014 my dermoids have grown to 13cm and 6cm and 5cm, bilateral. Th ey have been growing rapidly in the last 4 months and I need to have surgery soon to remove them, but desperately searching for a surgeon that can remove my eggs before taking out both ovaries. 

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  • Posted

    Sadly I have had a similar experience, Marie1977. About A year and a half ago I was admitted to the hospital with severe abdominal pain, it turned out to be two large dermoid cysts on my right ovary and a slightly smaller one on the left. I had laprascopic surgery  to remove them all, but kept my ovaries in tact

    Sadly, about a year later I was again admitted with the same type of pain on my right side and this time the cyst had grown so large that torsion (twisting the ovary) was a problem and I ended up having one ovary removed.

    Now a few months later another cyst has shown up on my ultrasound, on the other ovary, I'm only 31 and I can't keep going through surgery, nor do I want to lose my remaining ovary. Menopause in my 30s? No thanks! Has anyone else had this experience?

    Has anyone had any luck or insight with anything? I'm an open door at this point... Conventional, chemical, Naturopathic, homeopathic...

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    • Posted

      Hi s08981, in I just went through a similar situation. I am only 32 years old and in January I started feeling terrible and my stomach began to appear as though I was pregnant. I went to the Dr. in Feb for an ultrasound, in March I found out that I had one dermoid cyst the size of a football (american) on one ovary. I had surgery in April, by that time it was the size of a basketball and there was another on the other ovary...so he had to remove both ovaries. I am trying out different Rx now to see what works best, but the hot flashes are out of this world!. I wish I had more advice to offer.
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  • Posted

    Hi Marie,

    I am in the exact same position as you with pretty much the same track record. I'm 26 with no children and I'm pretty sure I'm going to lose my right ovary when I go in for surgery on Wednesday. When I first had the emergency operation at 21 the specialist never told me they can reoccur but the doctors I've seen this time due to pain told me that they are a reoccurring cyst and this should of been explained to me.

    I know how you feel and if you need any other advice give me a shout!

    C X

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  • Posted

    Hi Ladies,

    I am new here anchor actually across the pond in the states. As all of you know there isn't a lot of information on dermoids.

    Would each of you mind giving an update about what has happened since and how you are feeling (same, worse, improved)?

    Knowledge is power, right?!

    I had a grapefruit size dermoids (one smaller than the other) inside each ovary. This was my first abdominal surgery, btw (have had four total, fifth may be around the corner - boo). They did a l aperotomy. If they actually took me seriously in all my ER visits instead of tell I g me my job is too stressful, here take options and b/c and calm down, it may have been a laparoscopic surgery. Which we all know is the way to go to prevent issues such as adhesions. I have those now. Oh and one u/s didn't show either of them. It took another one (the one prior may have been w/o the ole wand) for them to show up.

    Had that surgery and once I had my firat period thereafter all he'll broke loose. But that's another story outside of our evil twin tumors (how I only now thought of naming them Dr. Evil and number two is very frustrating, lol!).

    Fast forward....I had an u/s earlier this Summer and it says I have a complex septated cyst (small at 4cm) inside my remaining ovary. Differential with consideration of endometrioma but patient has past of dermoids. Mri suggested.

    Seeing an gyn/oncologist this week. Will see what the latest all knowing says. It seems each ob has a different opinion and usually insult the others.

    Will update you all.

    Sorry to hear of ao many other women enduring this gauntlet.

    Hang in there gals,

    OuchieGrouchie

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    • Posted

      Hi ouchie. Sorry to hear you're dealing with another cyst. You probably already know that most ovarian cysts and tumors are benign. Hopefully, you can find a surgeon with good cystectomy skills who will take the time to do a cystectomy versus taking the easy way out of taking the whole ovary with the cyst.

      Trust me - You do NOT want to go into "surgical menopause" if you don't have cancer. It's generally MUCH worse than natural menopause plus it's been shown by numerous studies to cause more harm than good when it's the result of treatment for a benign / non-cancerous condition. That's because the ovaries produce health promoting hormones a woman's whole life and HRT cannot adequately replace what's been removed.

      Best of luck with your appointment. I will be interested to hear what you find out. Hang in there!

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  • Posted

    Hi! I removed  dermoid cyst (6X7cm) before three months at the age of 22. They said to me that cyst won't grow back. Befor few days I find out that I had a new one (1,9mm). I don´t know how it is possible?! I also feel leg pain and PCO is back.

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