recurrent corneal erosion syndrome

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I had this condition un-diagnosed for many years its frequency has increased from once a year to twice a month or so. Eye drops such as chloramphenicol and chloromycetin make it worse. Chloramphencol ointment Chloromycetin ointment and Simple eye ointment seem to be the only treatment that works. I have to sleep on my back to avoid my eye burying into the pillow if I sleep on my side. To ensure I wake up and have no problem I have to apply a blob of chloromycetin and a line of simple eye ointment into both eyes at bedtime.

I don't really know where to go from here. Any successes out there?

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17 Replies

  • Posted

    Hi again Lindsay The eye consultant at Wycombe pressed my lower lid and described the lubricant exuded as being like toothpaste, instead of "oil". I can't stress enough that sleep with no sticky ointent is my enemy. 

    For your info Lindsay this website describes simple eye ointment:-, It is quite "bulky" when in the eye but comfortable when they are closed. I dont get that horrendous soreness with this regime, but do get the sensation of "soft dust" in my eye during the day and have to apply one drop of Celluvisc every 45 minutes , but I do have days with no problems at all.

    "Viscotears" I find no help at all. Chlorampenicol and Chloromycetin offer no lubrication but used in conjunction with simple eye o', it seems to stop or prevent infection. With me anyway.

    Being from New Zealand Lindsay there should be no shortage of andydrous lanolin, one of the SIMPLE E'O' components !

    good luck

    Dave T  

  • Posted

    Hi again Dave and Lindsay.    I think you and I Dave have found the right regime for these dry eyes...we both seem to be on the same track [at least for us]. Totally know what you mean about finding a professional who knows what you are talking about. I have suffered blank looks,shrugs and the constant phrase "nothing there". Grrr. 

    I tried Viscotears initially but they are no better than have to use them constantly during the day for any effect.    Just had a painful eye infection and went to Docs. I now tell the professionals what it is and what I want..makes my other half laugh.    Always ask for cloramphenicol ointment. Its better than the drops as it has more staying power than the drops,especially at night.   If you are desperate you can get the drops from a pharmacist who is supposed to examine the eye first and ask relevant questions about your eye health in general.  Only the drops can be obtained from the pharmacist,not the ointment which is a higher dose.


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